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Feb 10, 2025

Long-Distance Travel Tips with an Ileostomy

Traveling long distances with a high-output ileostomy can be a bit daunting, especially if you're just a few weeks post-surgery. If you're planning a flight from Iowa to Sweden, which is about nine hours, here are some tips and advice to help make your journey smoother:

1. **Managing Output:**
- Consider using Imodium (loperamide) to slow down your output. A common approach is taking 2–12 mg about 90 minutes before meals and at bedtime, but don't exceed 48 mg per day. Some people with short bowel syndrome use up to 96 mg per day. It's best to consult your doctor for personalized advice.
- Many people start using loperamide regularly only after 6–8 weeks post-surgery to avoid constipation. You might need to adjust the dose through trial and error.

2. **Food and Drink:**
- To reduce output, eat thick, low-residue foods a few hours before your flight and eat lightly during the flight.
- Foods like marshmallows, pretzels, chocolate cookies, and jellybeans can help thicken and slow output. However, test these at home first, as marshmallows can cause diarrhea for some.
- Avoid gassy or carbonated drinks to prevent your pouch from inflating.
- Stay hydrated, as airplane cabins can be dehydrating. Sip water regularly and inform flight attendants that you need easy access to fluids and restrooms.

3. **Seating and Flight Arrangements:**
- Book an aisle seat and request accommodations for frequent restroom use, as this qualifies as a disability need.
- Airplane lavatories are small, so empty your pouch before boarding. Consider using a high-volume pouch for the flight.
- If you use a two-piece system, bring closed-end pouches. You can easily snap them off and on, seal the used pouch in a zip-lock bag, and dispose of it in the sanitary bin.

4. **In-flight Emptying Tips:**
- Place a few squares of toilet paper in the bowl first to prevent sticking.
- Carry a small bottle of water to rinse the bowl and pouch.
- Flush frequently and use an odor eliminator, like Hollister Odor Eliminator Spray or Poo-Pourri drops inside the pouch.

5. **Security and Luggage:**
- Body scanners may flag your pouch. Simply state, "I’m wearing an ostomy bag," and be prepared for a quick hand swab.
- Language barriers can be tricky, so learn or print the local term for "ostomy bag."
- Bring double supplies: one set in your carry-on (TSA allows an extra medical bag for medical items only) and one in checked luggage.
- Print the TSA/Ostomy Travel Communication Card for easier communication.
- Support belts might trigger extra searches, so stay patient and explain calmly.

6. **Additional Considerations:**
- Many travelers report no noticeable gas build-up due to air pressure changes.
- Remember, irrigation is not an option for ileostomies.
- It's normal to experience emotional ups and downs. Support from family and a sense of humor can be very helpful.

These tips should help you feel more prepared and confident for your journey. Safe travels!
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