This topic is about living with meningocele, a condition that can affect bladder and bowel control. The person sharing their story was born with this condition and had surgery at a young age, which led to lifelong challenges in managing these bodily functions. They have a urinary diversion, which is similar to an ileostomy, and a stoma on the right side of their abdomen that helps drain urine into an external bag. They manage bowel issues through a careful diet and handle all aspects of their care independently. Here are some insights and advice shared in the discussion:
- Consider sharing your story in a more active section of the forum, like the "Let's Talk" area, to connect with more people and receive additional support. You can find it here: https://www.meetanostomate.org/discussion-forum/viewforum.php?f=9