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Jan 12, 2012

Living with Both Ileostomy and Ileal Conduit: Seeking Advice

Living with both an ileostomy and an ileal conduit, also known as a urostomy, can be a unique experience. The person sharing their story has had an ileostomy since they were 18 and is now facing the possibility of having a urostomy due to bladder cancer. They are looking to connect with others who have both types of ostomies to learn about daily life and any challenges they might face.

Here are some helpful insights and advice:

1. Ostomy support groups can be a great resource. Many people have met others with both an ileostomy and a urostomy who manage well, suggesting that handling two ostomies can be as manageable as handling one.

2. A person with first-hand experience shared their journey:
- They have had an ileostomy since 1997 and added a urostomy in 1999 due to radiation damage.
- Living with both types of ostomies can increase the chances of leakage, but it was the best option for them to continue working.
- They are open to answering more questions, highlighting the availability of peer support.
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