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Jan 24, 2007

Boosting Registration Through Community Outreach

This topic is about finding ways to increase membership in an ostomy community by reaching out locally and providing support online. The goal is to help more people connect with others who have similar experiences and can offer advice and support. Here are some steps and insights shared to achieve this:

1. Request printable promotional materials from the site administrator to help spread the word about the forum.

2. Arrange for local medical-supply shops to display these materials. Staff at these shops often receive questions about ostomy care that experienced patients could answer online.

3. Recognize the shortage of certified Enterostomal (E.T.) nurses in certain areas, like Essex County, Ontario, where one nurse covers over 600 patients. This can lead to unanswered questions or incorrect advice from general home-care nurses.

4. Introduce the forum to members of local Ostomy Clubs and encourage others to do the same. This can provide faster, peer-based problem-solving for new ostomates.

5. Distribute forum flyers in medical-supply stores, hospitals, clinics, and local ostomy support groups to reach those who might need help but are not yet connected.

6. Encourage active participation in the community. Everyone has something to teach and learn, and sharing experiences helps keep everyone informed about new products and techniques.

7. Suggest newcomers explore "pouch liners" for easier pouch emptying and cleanup, as mentioned in the forum’s New Products Index.

8. Encourage long-time ostomates to return to meetings and forums. Their real-world experience can be more practical than occasional nurse visits.

9. If local providers can't resolve complications like prolapse, hernia, or chronic pain, seek a second opinion from specialized colorectal surgeons. Surgical revision has helped some members regain an active lifestyle.

10. The forum can guide users in selecting appliances that fit their anatomy and activity level, treating skin rashes and irritation, solving leakage problems, recognizing and managing blockages, and identifying foods that may cause output or odor issues.

11. Remember key products and terms like moldable flanges (which should not be cut) and pouch liners.

12. Peer forums often provide faster and more accurate ostomy advice than overextended nurses or surgeons. Share the website widely so new ostomates can receive timely, lived-experience support.
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