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Aug 01, 2013

Dealing with Ostomy Appearance & Smell - Seeking Solutions

This topic is about managing some common challenges faced by individuals with a colostomy, specifically dealing with a noticeable bulge and persistent odor. The person sharing their experience had a sigmoid colostomy two weeks ago and is seeking advice on how to handle these issues, along with concerns about social interactions and personal comfort.

Here are some helpful insights and advice:

1. Emotional and Adjustment:
- It's important to remember that two weeks post-surgery is still very early. Anxiety about odor can sometimes make it seem worse than it is. Be patient and kind to yourself during this adjustment period.
- Many people initially feel less than human, but reminding yourself that the ostomy is a life-saving measure can help.

2. Colostomy Irrigation:
- Consult with your surgeon or a Wound, Ostomy, and Continence (WOC) nurse to see if you're a candidate for colostomy irrigation. Most people with a sigmoid colostomy can do this.
- Successful irrigation can allow you to wear a stoma cap instead of a pouch, reducing odor and helping to flatten the protrusion. There are helpful tutorials on YouTube about "ostomy irrigation."

3. Managing Anal/Rectal Mucus:
- Warm-water enemas can be effective. Use a Fleet bottle filled with warm water, instill it while lying on your side, and hold it as long as possible before expelling.
- For higher-pressure irrigation, consider using a Coloplast Peristeen Anal Irrigation Pack, which can be adapted for better flow.
- Some people find that clearing the mucus every six months is sufficient.
- You might try absorbent or retaining devices like large Tampax tampons or Coloplast Anal Plugs.
- Avoid chemical enemas if possible; warm water is the safest option.

4. Appliance Seal and Pouch Odor:
- Ensure the flange coupling on two-piece systems is secure, as gas can escape at the ring.
- Eakin Cohesive® seals might help with odor control, even on convex stomas.
- Switching to closed-end pouches or adding a drop of perfume or essential oil inside a drainable bag can help mask odors.

5. Clothing and Appearance:
- Wearing a thin, breathable compression tee or ostomy support belt under an untucked shirt can help disguise the protrusion.
- After irrigating and capping the stoma, many people wear only the cap plus the compression layer, which can virtually eliminate the "point."
- Charcoal-lined underwear is an option for important social events.

6. Rectum-in-Situ Considerations:
- A complete proctectomy is an option only if reversal is impossible and mucus or odor remains unmanageable, but it carries risks of nerve damage.
- Regular irrigation may gradually decrease bacterial load and odor intensity over time.

7. General Tips:
- Regularly check seals, use stomal deodorant drops, or charcoal pouch filters to help with bowel gas.
- Maintain good nutrition with adequate fluids, healthy fats, vitamins, and antioxidants to support healing and mental clarity.
See full discusison
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