This topic is about a woman who has been living with an ileostomy for 26 years after struggling with ulcerative colitis since she was a child. Despite the surgery improving her physical health, she continues to deal with anxiety and "what-if" fears decades later. Here are some insights and advice shared by others in similar situations:
- Re-frame "what-if" thinking: Instead of getting stuck in endless worry, try turning those fears into actionable plans. For example, think, "If X happens, I will do Y." Also, recognize that revisiting past traumas too much can sometimes make things worse.
- Accept anxiety as common and fight it actively: Understand that anxiety can be due to a chemical imbalance. When it hits, label it as anxiety and try to mentally "smash" it or ride it out. Remember, you're not alone; many people experience similar feelings.
- Practical coping for outings: Consider wearing high-rise underwear over your appliance, along with stretchy pants and a loose top. This can help secure and conceal the pouch, giving you more confidence when you're out and about.
- Medication experiences and options: Some people find modern anti-anxiety medications helpful, so it might be worth discussing alternatives with your doctor if current medications aren't working. Amitriptyline, an older medication, has helped some with sleep and mood without being addictive. Alprazolam is mentioned for quick relief during anxiety spikes.
- Perspective and self-compassion: Acknowledge the challenges you've already overcome, like education, marriage, and parenting. Perfection isn't necessary. Remember that ostomy supplies and techniques have improved over time, and you have the power to decide whether anxiety controls you or you control it.
- Community support: Sharing experiences with others who have similar histories can help reduce feelings of isolation. The wisdom exchanged is valuable, regardless of age differences.
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