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Sep 09, 2015

Living with a Colostomy: Seeking Advice and Sharing Experiences

This topic is about a person who is considering colostomy irrigation to manage constant output from their colostomy. They have an ileostomy that doesn't cause much trouble, but their colostomy, created in 2007 due to severe pain from an anal fistula, produces output almost constantly. This requires them to visit the bathroom 15–20 times a day, and they find it uncomfortable to have anything in the pouch. Their surgeon suggested trying colostomy irrigation, which is similar to an enema, to keep the bowel quiet for most of the day. They are seeking practical advice and experiences from others.

Here are some helpful insights and advice:

1. Colostomy irrigation can help create a more normal routine. Many people find that it reduces the need for frequent pouch emptying and are very satisfied with the results.

2. Before starting irrigation, make sure to get approval from your doctor and ensure that your remaining colon is healthy enough for the procedure.

3. To learn the technique, you can find helpful videos on YouTube by searching for "colostomy irrigation." Visual demonstrations can be very useful.

4. The best time to perform irrigation is often early in the morning when the bowel is less active.

5. For setting up the equipment:
- Hang the irrigation water reservoir at about shoulder height to allow a gentle flow.
- Use lukewarm or body-temperature water to prevent cramping.
- The Coloplast irrigation kit is recommended as it includes a built-in temperature gauge.

6. Some technique tips include:
- Adjust the cone angle gently until the water flows in smoothly.
- After the water is instilled, wait about an hour for the complete return. You might want to have a book or phone handy to pass the time.
- Try to maintain a consistent every-other-day schedule for more predictable results.

7. Consider your diet: monitoring and moderating fiber intake can help extend the period between irrigations when you are output-free.
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