This topic is about the availability of the Barnett Continent Intestinal Reservoir (BCIR) surgery in England for someone who has been living with an ileostomy due to Crohn’s Disease since 1995. The BCIR is a modern version of the Kock Pouch, which creates an internal reservoir from the small intestine. This reservoir is emptied with a catheter, leaving only a small stoma that requires a simple dressing, eliminating the need for an external pouch.
Here are some helpful insights and advice:
1. Availability of BCIR in the UK:
- The John Radcliffe Hospital in Oxford offers the BCIR procedure.
- There is also a center in Scotland that performs this surgery.
- A UK surgeon to look into is Mr. Edward Westcott.
2. Candidacy with Crohn’s Disease:
- A center in Florida requires Crohn’s patients to be flare-free for at least 3 years. Some members have been accepted after 21 years of remission.
- Having Crohn’s does not automatically disqualify you; it’s important to discuss your specific case with your surgeon.
3. Costs and Funding:
- The estimated cost for the procedure in the USA is around $225,000, with some insurance plans covering part of it, leaving patients with about $50,000 to pay.
- Due to the high cost, consider crowd-funding options like GoFundMe and seek assistance from Crohn’s and ulcerative colitis charities or support groups for fundraising advice.
4. Choosing a Surgeon and Preparation:
- Attend information seminars or speak with BCIR nurses to get the latest information.
- Consider the surgeon’s experience, the support staff, potential improvements in quality of life, and possible complications. Prepare a detailed list of questions and be ready to discuss all aspects during consultations.
5. General Encouragement:
- Keep an open mind, continue researching, and share updates with the community. Remember, eligibility and funding possibilities can change, so stay hopeful.
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