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41,430 members
Nov 10, 2007

East Coast Ostomates - Anyone from PA, NJ, or Delaware?

This topic is about someone looking to connect with other people who have ostomies, particularly women, in Pennsylvania, New Jersey, Delaware, and nearby areas. The person feels it might be challenging to find others who truly understand what living with an ostomy is like. Here are some helpful insights and advice shared by others:

1. People from nearby states like New York, Connecticut, New Hampshire, and Maryland have reached out, showing that there is an active online community on the East Coast, even if meeting in person is difficult.

2. Ostomates with 20 to 30 years of experience are open to offering support and answering questions. They are willing to share their knowledge and experiences.

3. When it comes to relationships and dating:
- One person with over 20 years of experience with an ostomy mentioned that most partners are not concerned about the ostomy. If someone is, they might not be the right match.
- Being honest and confident about having an ostomy can have a positive impact on others. You can choose to keep it private, as not everyone needs to know.

4. Experiences with surgery and reversal were discussed, with members suggesting open conversations about the benefits and drawbacks. Learning from those who have gone through it can be valuable.

5. General encouragement includes:
- It's normal to feel alone, but there are many ostomates willing to connect.
- Stay positive, keep asking questions, and use online forums to connect with others despite geographic distances.
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