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Aug 08, 2018

Considering colostomy due to paralyzed bowels. Need advice.

This topic is about someone who is considering a colostomy due to having a paralyzed large bowel. After months of tests and treatments, including medications and the laxative Linzess, they are still struggling with bowel function. They are seeking advice and insights from others who might have faced similar situations. Here are some helpful points to consider:

1. Remember, it's your body and your decision. Don't let family, friends, or even a surgeon pressure you into a choice that doesn't feel right for you.

2. Many people find that adjusting to a colostomy is manageable. It often brings more freedom and mobility once you get the hang of caring for the appliance. Online communities can be a great source of practical tips and emotional support.

3. Before deciding on surgery, try all conservative measures. Some people find that natural laxatives, like daily prunes or homemade prune purée, help restore regularity and soften stool, even after stoma surgery.

4. Make sure to have a thorough diagnostic work-up before surgery. Ask about tests like a Sitz-marker study to see if any part of your colon is still functioning.

5. Discuss all surgical options with your surgeon:
- A colostomy, where the colon is kept in place, might allow for daily irrigation, leading to predictable emptying.
- A loop ileostomy can be a temporary solution to see if the colon recovers. It can be reversed or converted to an end ileostomy if needed.
- An end ileostomy, where the colon is removed or permanently bypassed, results in continuous, more liquid output. While there's no irrigation, many manage well with modern pouches, emptying them as needed.

6. Ask your surgeon about the possibility of reversing the procedure later if your condition improves.

7. Hearing from long-term users can be encouraging. Some people with decades-old ileostomies report living full, active lives. Others who delayed surgery often wish they had acted sooner to avoid pain, incontinence, and social isolation.

8. Surround yourself with supportive professionals, peers, and loved ones. Online ostomy forums can be a valuable resource if local support is lacking.
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