This topic is all about managing a urostomy on a daily and weekly basis, including the techniques, products, routines, and ongoing challenges that come with it. Here's a breakdown of some helpful insights and advice shared by those who have experience with urostomies:
- The originator uses a Dansac one-piece convex urostomy pouch and a Hollister night-drainage bag, which is changed every 10 days. He initially had a skin allergy to the adhesive, but it has since settled. However, he still experiences irritation from the hard edge that forms when the adhesive oozes out and hardens, as well as occasional creases from the flange.
- Leaks are rare, with only three incidents in three years, mostly occurring during heavy physical work. In hot weather, heavy sweating can saturate the pouch's cloth backing, so he uses a folded paper towel for absorption.
- His daily routine includes disconnecting the night bag early in the morning, emptying it, and letting it air-dry. He showers with the pouch on, empties it about 8-10 times a day, and prefers drying the spout with rolled toilet paper.
- Every three days, he changes the pouch while lying on the bed before eating or drinking. He warms the new pouch with a heat-pack, uses adhesive-remover wipes, cleans with baby wipes, and applies a skin-prep wipe. His wife helps apply the warmed pouch, and they use hand pressure for a minute to secure it.
- He shaves the area with a battery mini-shaver every fourth change to reduce hair-pull pain. Current annoyances include adhesive issues, crease formation, summer perspiration, and the need for better stoma support during heavy work.
- He is developing a small parastomal bulge or hernia and is advised against repair. He is looking for a supportive belt to help with physical tasks. Proper belts are solid and have helped reduce bulge visibility and eliminate flange creasing.
Advice and insights from others include:
1. Hernia prevention:
- Avoid heavy lifting to prevent or worsen a parastomal hernia. Use a hernia/support belt and seek medical advice early.
2. Flange creases/adhesive ooze:
- Compress the skin before applying the appliance to eliminate creases that can harden and irritate.
3. Change position & leak control:
- Some prefer changing at a sink or mirror to minimize mattress risk. Both standing and lying techniques can work, so choose what best controls output for your stoma type.
4. Product & routine tips:
- Hollister two-piece convex skin barrier and urine night bag are reliable. Wax ring sealers can be simpler and cleaner than paste for extra leak protection. Pre-cut flanges save time. Keep the daytime pouch no more than half full and dry the tap/spout with rolled toilet tissue.
5. Diet & hydration:
- Maintain high fluid intake to ensure good output and stoma health. Gradually reintroduce foods and avoid poorly tolerated items.
6. Mental outlook:
- Keeping a positive perspective and preferring life with a stoma over alternatives can help cope with daily inconveniences.
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