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I have the primary diagnosis of Ehlers-Danlos Type III and Central adrenal Insuffiencey with the co-morbid conditions of Gastroparesis, Colonic Inertia, Pelvic Floor Dysfunction, Chronic Intestinal Pseudo Obstruction, Small Bowel Dysfunction, Esophageal Spasms, Small Intestinal Bacterial Overgrowth, Pancreatic Insuffiencey, Chronic Pain, Scoliosis, Dysautonomia, Severe Widespread Dislocations and Joint Instability, Chronically Low Vit D, Hypothyroidism, Secondary Ammenorhea, Anemia, and Raynauds Disease. I have had my ileostomy since November 2017 and it will be permanent. I currently am looking to get my loop ileostomy converted to a permanent one and get my colon removed since I will never use it again anyway
Other Members
f, 34
I am looking for friends and just people to talk to. I am new to this. I just had my su...
Illinois, United States
m, 54
A fun loving person who love to travel.
Trinidad and Tobago
f, 39
I'm extremely new to my ileostomy, and am still at that overwhelmed stage. I'm looking fo...
United Kingdom
f, 57
I am a married 49 yr old women who loves to spend time with her grandkids, just had a co...
f, 57
Looking for anyone to relate to, perhaps share stories. Help each other out!
Arizona, United States
Currently online: 15    
3 members & 12 visitors
w30bob (m)
Xerxes (m)
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