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maddie50322
member

About
I have the primary diagnosis of Ehlers-Danlos Type III and Central adrenal Insuffiencey with the co-morbid conditions of Gastroparesis, Colonic Inertia, Pelvic Floor Dysfunction, Chronic Intestinal Pseudo Obstruction, Small Bowel Dysfunction, Esophageal Spasms, Small Intestinal Bacterial Overgrowth, Pancreatic Insuffiencey, Chronic Pain, Scoliosis, Dysautonomia, Severe Widespread Dislocations and Joint Instability, Chronically Low Vit D, Hypothyroidism, Secondary Ammenorhea, Anemia, and Raynauds Disease. I have had my ileostomy since November 2017 and it will be permanent. I currently am looking to get my loop ileostomy converted to a permanent one and get my colon removed since I will never use it again anyway
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