Meet & talk to fellow OstoMates Support | Friendship | Relationships 23,0K + members


I am a recent Ostomate (Oct16th). I had a pelvic floor surgery that used surgical mesh in 2008. Had one minor mesh related repair in 2010 and was fine until last September 2020. Severe pain in my lower back resulted in a colonoscopy. It failed due to a severe blockage in lower sigmoid colon. Long story short, an attempt to repair it by removing the bad part and reconnecting failed and I woke up from surgery to discover the ostomy bag attached just to left and slightly below my navel.

I was in the hospital for a total of 12 days and have been home since trying to learn to navigate my new normal. I am having a lot of trouble adjusting, not so much accepting it as navigating how to attach it securely so it doesn’t leak, how to shower or bathe, does anyone track what they eat so their stoma doesn’t erupt during a certain time frame etc.

By the way I did name my stoma Sparky, after an older mini volcano firework I used to enjoy when a child! I’m in excellent shape and was feeling better than I ever have, and then this. I’m not feeling sorry for myself, I just want to overcome this and succeed. My surgery saved my life and I remind myself of that every time I’m dealing with a mess on my hands and start to feel overwhelmed.

I would love to have friends who have been where I am and can relate to my story. I need especially tips about bathing, showering etc. every time I do that it’s not long before my wafer comes lose or I have a blowout, or leak at a time I am in public. Unless I get an extension from my Dr I have to return to work next week and the thought is terrifying me. We have only an industrial typical industrial bathroom for women; 2 stalls, a concrete floor and a giant trough steel sink. The automatic light times out after 5 min or so and won’t come back on until you exit the stall!
If I ever get into a situation where I have to change it completely or a bad clean up I don’t know how I will handle that.

I look forward to meeting and sharing with others here who have been where I am! I am 66 in body but active and young at heart. Basically like a 60’s hippie who woke up to find herself in an older ladies body! 😲
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