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Diagnosed with UC in 2005, I had a colectomy in 2018. The hope was to get a j-pouch and live a "normal" life. Unfortunately, 2 months after surgery my small bowel became inflamed. After several ileoscopes it was determined I had Crohns. I have tried several treatments (Humira, Inflectra, Stelara) but nothing has found to be effective. I'm currently increasing my does of Stelara from every 8 weeks to every 4 weeks. I'm not very hopeful anymore as my bad days outnumber my good and I haven't had much relief from any medications.
I'm here for support and camaraderie. I'm interested in finding someone else with an ileostomy who has severe Crohns as well.
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