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klark
member

About
Well... it's been almost 6 years so I guess I should update my profile. Was diagnosed Sept. '09 with a tumor in my colon/rectum, down very low. Too low in fact to save the sphincter, no reversal possible. Immediately started radiation and chemo around Oct. 1st and had sugery scheduled for Dec. 2nd. Underwent the Hartmann's Procedure which closed the rectum and Dr. placed a nice pretty stoma right on my belt line 2 inches to the left and 2 inches up from my belly button. Whatever I wear the appliance gets in the way. Boxers, briefs, loose jeans, baggy jeans, sweats.... whatever. What a pain in the ass! I'm sure most of you know exactly what I'm talking about. The doctors gave me a 6 week break after surgery, then I had 13 weeks of intensive chemo again. Heavy doses of leucovorin, and oxaliplatin along with anti nausea, anti diarrhea, and steroids. Every other week, the whole procees was 26 weeks... so I'd have a good week then a bad week (chemo week). Had awful neuropathy from the oxali in my mouth, lips, tongue, fingers, hands and bottoms of my feet. Drank only water and hot tea for 4 months, fingers and fingertips still numb, no feeling at all on the bottom of my feet to this day. My oncologist says it will pass, the feeling will come back eventually, I think he's blowing smoke up my... in my stoma. Sore ass, weak, dizzy, numb, sometimes nausea, emotional from the steroids absolutely the most horrible time of my life!! Post surgery pathology indicated they were able to remove all the cancer, all of my CT scans have been clean since. My wife, family, and friends were most instrumental in pulling me through this pretty tough time. Only now am I able to go over all of this and actually write it down to share with all of you.

I'm 68 now, married, and have 3 great kids, 1 son, and 2 daughters, and a 1 year old granddaughter. Also retired, actually was forced out when I went on long term disability. I took it pretty hard at first but now I really like my afternoon naps LOL!! I stay in shape and I'm pretty active, not a fanatic though! I play a lot of golf here in Jersey, also bowl about 3 or 4 times a week. I used to coach in a youth hockey league but no more, I just enjoy watching my son play now.
I love the NY Giants, Notre Dame football, and I'm an avid NY Rangers fan.

I hope anyone reading my profile here can relate to my experiences, and realize that no matter how bad it gets, there is light at the end of the tunnel. Corny cliche I know. We're the lucky ones! For we're still here!!

I have many friends online who send me corny and stupid jokes, I will share most of them with you LOL!! I guess I'm looking to this site for osto friends or to find someone to talk to, regarding colorectal cancer, colostomy, colostomy care, do's and don'ts, products, share info and experiences, etc. etc.
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