Each time I read the replies to the topics on here I better understand what folks are going thru, ie, can't sleep, leaks, skin issues, etc, etc, etc, and I keep thinking back to the days before I was given my ostomy. My docs really didn't say much at all about what an ostomy would be like, and I wasn't asking. They mentioned it was always a possibility if they ran into issues during the surgery, but my impression was it was going to be a not so simple, but not impossible small bowel "take out the bad pieces and reconnect" type of operation. When I went for my pre-op X-rays the technician was nice enough to lift his shirt, show me his ostomy and tell me it doesn't affect his life one bit. I'd like to find that SOB now and smack him right in the kisser.
So were you better prepped for your ostomy than I was........or is everyone kind of left in the dark only to find out it's not so rosey on this side of the fence? Do you think the Docs even know all the crap we have to go thru? I sure didn't. And if I hadn't found this website I would still be thinking most folks have no issues with their ostomy, so it must just be me. And let me be clear here........my issues are teeny-weeny compared to what many of you guys are dealing with. So I'm wondering if Docs actually know how many ostomates are having problems? I know many folks keep to themselves and only go to a Doc when things really get bad, so that's certainly a possibility. Are you guys communicating your issues to your Docs? I'm going to have a long talk with the next Ostomy Nurse I see and find out if they know the difficulties we ostomates have. I'm hoping they are fully aware. If not we need to start speaking up!! Let me know what you think.