I was doing okay for a while. My Crohn's has been calm, ileostomy working well, but my pancreas isn't happy. I had my first attack of acute pancreatitis over a year ago and I was told it was caused by azathioprine so I was taken off it. About a month ago I ended up in the hospital again for a few days with acute pancreatitis, and then had another attack about a week ago. I have been losing weight and am extremely fatigued. I will see a pancreatic specialist in a week. I will have more tests done, but most of the tests so far have come back ok except of course my enzyme levels which are off the charts. Doc thinks maybe it's autoimmune. Apparently AIP is fairly common with IBD, and Crohn's patients are more likely to get azathioprine induced AP. I have searched this site for similar stories and found some but most of them are no longer members. Has anyone who is currently a member gone through something similar?
I am taking enzymes and eating a very low fat diet. Haven't had any alcohol in years. Having Crohn's, ileostomy and pancreatitis really limits what I can eat and drink. Trying to go with the flow but am getting really sick of being sick.