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GI surgeon magazines offer stats on reversal sucess rate

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Posted: Sat Jul 24, 2010 9:53 pm
I have hunted online for months on medical doctor web sites and the stats for reversals don't look that good.  They state the big concerns are     if you have another condition that might add more risk to surgery. (heart disease, diabetes, pulminary problems)
          if you are obese
          if you are over 55
If you can be considered for the reversal, sucess is not garenteed.  You may deverlope problematic scar tissue, there is the risk the surgeon may nick something nearby, you may have colon or anal leakage, or wake up with an ileostomy that may be more difficult to manage than your previous colostomy. Of the total patients in one study I read said of the actual reversals sucessfully done. After 6 1/2 year follow up. 44% were dead, they did not say why, of the living they all reported a better quality of life after reversal, compared to the patients that refused to try the reversal that reported a lessor quality of life with colostomy.
My surgeon is discouraging a reversal attempt and feels like if we can manage our colostomy,  they chances of having anal leakage and needing diapers is very high, and they are more visably noticible and smell more than bags.
I know this post is not encouraging but this is what I have found so far. Please ask your doctors to tell you the down side of surgery to make and informed discission.

Also if you do have a reversal, studies show the Drs. perfer the scope  because they can do it quicker and you can leave the hospital sooner.  However, they do often report more oops, during surg. because they can not see the surrounding area that is visible in an open surgery.  Like if you need more staples for leakage in an area, nicks are easier to miss. And in my case in an open surgery they can  check surrounding areas for other problems, like the tumor on my overy that would have gone undetected.  

Hope this helps alittle, and I am still searching for second Dr. opinions for honest answers, keep you posted
Posted: Sun Jul 25, 2010 5:52 am
i to read and my woc nurse told me the other half about reversals that werent reliable and that in a few months you could to go back to a bag and or worse you could end up in dialis for the rest of your life do to dehigration and oh yeah that sounds like fun
Posted: Mon Jul 26, 2010 9:45 pm
no thanks! even if I had a choice I would stay with the ileostomy...a pouch is better than the risks of reversal i think. I mean, whats the deal with where your "end" is? not so much to me. I'll take healthy and pouched over all that. lex
  Past Member
Posted: Wed Aug 25, 2010 5:04 am
Hi, I've had a loop ileostomy for 31/2 years. When the surgery was done it was suppose to be temporary. I had a bowel that would not function "colonic inertia". Today I saw a third surgeon that has refused to do a "take down" or a rectum anastomosas. They all say that the risk is not worth the reward and that my quaility of life may get worse rather than better.

I have a very sore ileostomy daily along with a large hernia postioned directly below the stoma. I can do very little walking or daily exercise without the whole stoma swelling and bleeding. I need pain medication daily. I cannot work or manage much of anything if it means standing on my feet.

I would really appreciate some feed back from anyone who has had either surgery. I'm also type 2 diabetic, overweight and considering a lap band surgery. Does anyone have any experience with this?

I really could use some advice on my situation and would appreciate everyone's input. Thanks in advance...Cathy


Last edited by Past Member on Wed Aug 25, 2010 2:40 pm; edited 1 time in total
Posted: Wed Aug 25, 2010 1:26 pm
                                 
cmackenz wrote:
Hi, I've had a loop ileostomy for 31/2 years. When the surgery was done it was suppose to be temporary. I had a bowel that would not function "clonic inertia". Today I saw a third surgeon that has refused to do a "take down" or a rectum anastomosas. They all say that the risk is not worth the reward and that my quaility of life may get worse rather than better.

I have a very sore ileostomy daily along with a large hernia postioned directly below the stoma. I can do very little walking or daily exercise without the whole stoma swelling and bleeding. I need pain medication daily. I cannot work or manage much of anything if it means standing on my feet.

I would really appreciate some feed back from anyone who has had either surgery. I'm also type 2 diabetic, overweight and considering a lap band surgery. Does anyone have any experience with this?

I really could use some advice on my situation and would appreciate everyone's input. Thanks in advance...Cathy



Hi Cathy - not had experience of this other than the fact that I am in exactly the same position .... spooky! But as I am not quite at the end of my long journey, I haven't as yet had this discussion with a hernia/colo-rectal surgeon ..... so will be very interested in any responses .... my initial fistula has led to type II diabetes, very large hernia, overweight, limited mobility, back problems and now neurological problems along with other problems of an auto-immune nature and possible Fibromyalgia, opiate pain relief etc etc .. and I can manage very little too. Interesting .....
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