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Overnight Bags?

Posted by SallyWillard, on Mon Mar 28, 2011 6:46 pm
Hey guys! I'm fairly new to this site but I've looked all over and can't seem to find an answer to this one? I have CD (17 years) and an illeostomy (5 years). My issue is this: Is there some type of bag that will allow me to sleep through the night? I wake up anywhere between 1-3 times every night. It's getting old and I need my beauty sleep. Any ideas? Or existing inventions? Thanks!
Reply by Xerxes, on Mon Mar 28, 2011 8:49 pm
Hi Sally,

This seems to be a constant problem especially for ileostomates who have a high output. Of course, there is the obvious solution and that is to restrict your intake after a certain time so less will be passed while you're sleeping. Another one would be to use a high output pouch only when you are sleeping. If you use the convatec two piece system this is easily done by just snapping the smaller pouch off and replacing it with the high output one. I am sure others will have additional good suggestions for you.

Reply by banshie3by5, on Mon Mar 28, 2011 9:15 pm
Hi Xerxes said,a nice 2-pc system would allow size changes.  My colo acts like an ileo due to cut&paste surgeries. First surgery took 11cm of ileum, 2nd surgery took a couple seperate chuncks of large intestine, then the Colo at the Sigmoid/colon junction. That was 5yrs ago. I wear the large bag day & night cause when my body decides to flush I blow the smaller bags off.  I used to blow larges off too, but ileosorb & diet helps.  I use Coloplast's Assura system.  It has small bags, large bags, and stoma caps for intimacy or showering.  They all fit the same wafer.  The filter in the bag doesn't really work, but I like that because I think gas still stinks through the charcoal.  I haven't had any trouble with leakage. I put the little swim/shower sticker (enclosed) on it just to be safe.  Another thing I find useful is Ilesorb or Par-Sorb granule packets.  They turn the liquid to gel-mush so liquid doesn't leak.  I use Eakin seals to protect my parastomal skin and get a good adhesion/seal with the wafer.  I don't use any preps or adhesive removers, as suggested by WOCN, and the skins been healthier with a better fit.  Another idea for good glue-sticky is heating pieces with a hair-dryer or heater.  For me it worked better then my hands or armpits, like the WOCN showed me.
Reply by perkyberky, on Mon Mar 28, 2011 9:32 pm
Could you tell me more about the ilesorb or par-sorb packets.  I have never heard of them.
Reply by chaceme5961, on Mon Mar 28, 2011 11:21 pm
Hi Sally,
    there  is  bags  that  have  what  i call  a  spicket  at the end  of  the  bag instead  of  the  opening  with the  clamp  its  a  nice  size  bag  and i find  i last  the  night  sleeping  and  will give  you  confidence to do the  same,  i still get  up  in the middle of the  night  but  its  only  once  and  some  nights  i sleep all the  way thru,  its  by  hollister  and  they take  most  insurances   i dont  know what  size  you need  but  if you go to  you will be able to see  all the  new  items.  they  get  new  stuff  all the  time,  i have  been using  these  bags  since  july  and  i love  them,   they  are  called  "new  image  high output drainable pouches"  i will check  in  more  often  and  see if  it  worked out for you,   i first  had  a colostomy  from 04-10  and  just  had  the  illiostomy  put on   for  good,  i hope  this  helps  and  plz  if  you need  any  other  help    ask,  ill be  happy  to  pass on any useful  hints  

Reply by chaceme5961, on Mon Mar 28, 2011 11:26 pm
i never  heard of  the  swim/shower caps  to put  on  stoma?   omg  that  would  be  great,  i use  hollister  and  only the  convatec  paste  and  strips   i would  love  to look into  that  plz  tell me,  can  i find  them  on hollister site?  ty for the  info

Reply by PJT, on Tue Mar 29, 2011 9:19 am
Hi Sally,

        I've had my ileostomy fo over 30 years and it's rare to ever get a full night's sleep without having to go to the bathroom and empty my pouch (I prefer the word "pouch" to "bag". It sounds less icky!) I agree totally with Xerxes. Try to limit what you eat before you go to sleep. If you eat a big salad you may as well just stay awake!

     Usually one visit to he bathroom at around 4:00 A.M. does it for me. I use a Convatec and I don't think using a larger pouch would make any difference for me. I would still want to empty it, even if it wasn't totally full. My technique, which I've mentioned when this question came up before, is to not even dwell on it and to just get up and empty the pouch. If I start thinking about it (can I make it till morning? will I get back to sleep? etc.) my brain will turn on and I'll never get back to sleep. Also, I keep a night light in the bathroom so I don't have to turn on all the lights. Hope this helps.

Reply by SallyWillard, on Tue Mar 29, 2011 9:53 am
Thanks for all the responses. I have tried not eating past a certain time or watching what I eat but it doesn't seem to effect the amount of output, just the consistency. I guess mine is on duty 24/7 no matter what. I will look into the larger output "pouches" when I place my next order which should be within the next week. Great to have someone to ask who understands and has experienced the same issues. You are all so pleasant, optimistic and inspiring! Do you think that's because of all we've been through or were we like this before and it just got amplified? Thanks again!
Reply by chess124, on Wed Mar 30, 2011 2:25 pm
if high putput at night is a big proplem then try eating around 5 large marshmellows half an hour before bedtime.along with the gelling sachets this will help to slow down output and you might get a ful nights sleep.give it a try and see how you go.let us know how you get on
Reply by The Bag, on Wed Mar 30, 2011 3:00 pm
Hey is my 2 year anniversary. That being said, I had the same fear as you. I tried staying up dice. What I've been doing is making sure I'm done with dinner before 7 and let the chips fall where they may. I sleep solid through out the night, there are exceptions, when I get gassy. This is rare. Sorry to hear that you have to get up that often. Also, try eating a light dinner. They don't make our bags any bigger, I don't think that would help either. Hope you work it out or if some other folks have any other ideas.
Reply by panther, on Wed Mar 30, 2011 3:17 pm
If your output is very watery you can get some speacialist bags they are the same as urostomy overnight bags, you have a tap (But it's wider than the urostomy ones) on the end of your bag then a tube attatches to that and attatches to a bag you have on the floor. We can get them in the UK, not sure if you can get them?
Reply by Primeboy, on Wed Mar 30, 2011 5:11 pm
Hi Sally,
Talk with a Hollister representative about their high-output bags with soft taps. These bags are designed for ileosomates with high liquid output. The bag has a plug under it which will allow it to drain into a much larger bag. Hollister is good about sending people samples for their products. Good luck!
Reply by butterfly48, on Thu Mar 31, 2011 4:18 pm
I too have the same problem even when I am up - watching tv or reading so you can imagine how it is going to the bathroom every 15 minutes or less especially when invited out to a friends house for dinner.  It has almost been a year and my situation has improved depending on food.   Marshmellows do work and so does rice in slowing the bag down .
Also I have to keep my stress levels low or my bag causes problems such as gas, not emptying then get a headache or bag emptys too much at one time and will burst.  
Unfortunately, I have to take just a small dosage of morphine - the side effect is constipation and with a sleeping pill I can least get 6 hours of sleep without getting up.  You are taking the right approach by talking to people and trying different foods to see what agrees with you, hopefully, in time you will be able to control your stoma so it doesn't make you miserable.
Can anyone answer:  When your bag is 3rd full do you get stomach cramps or get a headache?  Regardless if it is liquid or solid   I have an ileo.  Good Luck  Butterfly48
Reply by ilsn2u, on Sun Apr 03, 2011 5:21 pm
Primeboy--do you have Hollister numbers for the appliances you're talking about?  That would be useful.  Thanks.
Reply by Primeboy, on Sun Apr 03, 2011 5:50 pm
Hi  Ilsn2u,
I use the Hollister New Image 18013 High Output Drainable Pouch. When I was in the hospital, the ET nurse told me I could get tubing and a large collection bag which could hang off the side of my bed if necessary. I never ordered it because the high output bag was sufficient.  I have not seen the large collection bag in the catalog so you should talk with a Hollister rep about it. Keep in mind that the 18013 pouch is intended for ostomates with liquid or muddy output. Solid stool will not drain out of the bottom tap. Good luck!

PS: I never get cramps or headaches resulting from the fullness of my bag.
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