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Tender Testicles

Posted: Fri May 20, 2011 7:26 pm
I have only been an ostomate for 2 months after my bladder was removed along with my prostrate and lymph nodes due to cancer. Since that time my testis have been very tender and even painful to touch.

Is this a normal situation and will it get better and if so, how long will it generally take?

Now that they are of no further use, I was wondering if they could not be removed?

Please advise what I should expect in the future in this regard.

Bob

PS. While I am very thankful to have my life saved by the operation, I sometimes wonder if it was worth the effort. Yes I know I could be dead now or soon without the operation but it is so very hard at times that I just wonder sometimes. I do know it is all for the best and I may now grow old enough to see my [2 year old] son grow up, but I still get very down at times.
  Past Member
Posted: Sat May 21, 2011 6:34 am
hi bob, and welcome to ostomate. i remember the same thing right after my surgery. it will get better, a lot of nervers are in that area and they take longer to heal than muscle. i would keep my tackle as they produce hormones such as testerone which helps keep us manly. good luck and be patient
  Past Member
Posted: Sat May 21, 2011 9:23 am
I think that this is one of those situations where the procedure is the same for all...it does effect each somewhat differently.
I had my colostomy in '08,  a reversal in '09 and am tickeled to death to lose the bag.  After the ostomy I too noticed a soreness in my groin.  Also a numbness from my feet all the way up to my upper chest.  Gradually it lessened to where it now only effects my groin area, still aonnying, but tolerable.
Erections are rare even with Cialis and when accompolished no ejaculation.  That is not entirely due to the surgury.  I also am on Mirapex and it causes "retrograde ejaculation"  where the semen is diverted back into the bladder. (Kinda funny sensation,tho).
Other than that it is something that must be lived with....beats the alternative tho.
You will gradually develope things that apply only to you.  be patient



good luck and God Bless

jacksprat
Posted: Mon May 23, 2011 11:21 am
Hang in there, it will get better. Wear tight shorts.
Posted: Mon May 23, 2011 11:30 am
Hi Bob had my bladder & associated bits removed, same as you , at age 62 , & I've just turned 66. Just had the usual post op pain , but I dont remember any Testicular problems. I did have a post op incsional hernia repair ( Tummy tuck, hernia repair & tidy up original scar line ) That healed well & in no time I was back to normal--ish.

Dont go down the rout of having your Balls removed mate---Unless you want a new career as a Soprano with an Opera company. As  mentioned lots of cut muscle & nerve endings down there so give it time to heal , maybe rejoin & settle down.  Its a big Op --so no rush mate!!
  Past Member
Posted: Mon May 23, 2011 12:58 pm
Hi Bob,

Had the same surgery (plus some) and also had the testicle pain.  It's basically from the nerves that have been cut.  Underware that keeps everything nice and secure WILL help.  I wear "sport boxer briefs" from Jocky.  For me that helped, but not 100%.  If you have ongoing pain that affects your life, I'd recommend seeing a pain specialist for help.  I'm on a narcotic patch (at a  very low dose) and it controls the testicle pain 100% with little side effects.  It's also quite possible that, over time, it will get better.  

Also, the psycological effects of having your sex life turned upside down can be massive.  This will get better over time.  Right now it hurts.  It SUCKS and there's no good reason for it.  Time will help though and there are a few books out there that talk about intimacy post prostate cancer (which is close to what we had).  They can help if your partner can accept the "new" you and be flexible.  Give it time mate.  Although the testostorone suplements can help in ways (Testim gel), for me, it made the psycological side of things worse.  See what works for you.  

The physical pain is 100% controlable with the right meds.  The psycological pain will take longer -  but it will get better.
Posted: Tue May 24, 2011 7:22 am
Thank you everyone for your replies, I know that things will get better but I also believe that some will get worse. As I said before, I am still alive and expect to be that way for some time now that would not have been the case without the operation.

I was just letting off steam and saying how I feel, I always feel better after I have "let it all hang out" and aired my dirty washing. I will be OK and I am truly thankful for my bag and my new life, but that will not stop me from complaining about it just to make me feel better to know that others know how I feel.

At home and with friends, I am always " it is all OK and no problems" when inside I sometimes just want to scream and answer the question, "How are you?" with the truth and not, "Good thank you."

Some times I feel like the person that they are interviewing on TV after a violent death of a loved one and they ask, "How do you feel?" I want to tell them.

But, in truth I am very good under the circumstances and I am very thankful that I only have a urostomy and not a Colostomy or both.

An old saying, "While I live, I grow." holds much more meaning today than it did before.

Again, thank you all, I will be OK.
  Past Member
Posted: Wed May 25, 2011 6:17 pm
                                 
jacksprat wrote:

Erections are rare even with Cialis and when accompolished no ejaculation.  That is not entirely due to the surgury.

jacksprat


i think this situation is fairly common with males after this type operation. i had a loss of sexual function directly after my surgery and was advised by my surgeon the nerve damage would heal with time.
the no ejaculation thing did not correct itself , and as noted it feels almost painful at first but this does go away{or it did for me}. at 10 years post op, i still enjoy sex and intimacy.....so i would advise anyone to be patient and dont give up.
Posted: Sun May 29, 2011 10:39 pm
I HAD THE BLADDER, POSTRATE, URETHA REMOVED BECAUSE OF CANCER MYSELF.
I WAS 71 YEARS OLD..LAST YEAR. I HAD A LOT OF PAIN IN THE TESTICLES AND
PENIS FOR ABOUT 7 MONTHS. I HAVE VERY LITTLE PAIN NOW, SO I AM SURE YOU
WILL HAVE A SIMILAR EXPERIENCE. SURE DOES FEEL GOOD WHEN IT QUITS HURTING...LOL
  Past Member
Posted: Sun May 29, 2011 10:44 pm
In addition to some low level narcotics (patch or pill) you REALLY need to ask your doc about Lyrica.  It is MADE for nerve pain and has made a huge difference.  Lyrica and a pain patch.  Do it!!
Posted: Mon Jun 13, 2011 6:58 am
                                 
DUFOUR 12000CT wrote:
Hang in there, it will get better. Wear tight shorts.


How does that work/help?
Posted: Sat Jun 18, 2011 1:23 am
Hi,

I think I may be the only female writing in reply to your post, but having had my surgery for more than 45 years.....back when I was 15, has exposed me to all kinds of complications.  One I didn't expect was nerve damage to the bladder.  So in addition to having an ostomy,  I lost all sensation to the bladder.  I never know if I have to pee...a.nd so I go by the clock.  My big fear was that I'd never feel anything sexually.......but it took time, I healed and eventually had a satisfying sex life.  Of course, I never did have a comparison, since I had surgery at such an early age.    It's 45 years later now, and I have no real regrets.  
When our bodies go through so much trauma, it's sometimes difficult to reconcile the acomodations and changes we have to make, just to resume a somewhat "normal" life.

But I've lived more years with my ostomy and other conditions, so I know no other way.  I do know, that life is worth living , and my flaws and scars are my "badges of survival".  

People on this site are wonderful, and will share and support you as you continue to heal.  Many women are also adjusting to life changes, especially when they've had to endure chemo & radiation that has affected their sexual activities.  We all have to be kind, and accepting of ourselves, and find meaning in our changed circumstances.   Best of luck to you.

Marsha
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