So the reason I didn't reverse my colostomy was because of uncontrollable diarrhea. I was happy to have a life again. The rectal vault was completely inactive and I clean it twice a year. 2004-2006 I had severe fistulating Crohn's disease.
Forward 5 years. I was camping this weekend and my rectal pouch decided to flush mass amounts of clearish/yellow fluid, especially when my bladder was the littlest amount full. It slowed down and stopped after 2 days. My stoma was flushing high volumes, also. Everything was going at once. It finally stopped, but I think it's because I ended up severely dehydrated, so nothing more to flush.
Is it "normal" for the pouch to flush also? My Crohn's came out of remission this year. Is it possible to have a new start of it in the pouch, although it's retired from use? Could it possibly be a fistula to the bladder that self-sealed?
Also this time around, when I get dehydrated my knee-calves-ankle-feet blow up huge with edema. Is this normal? I have an appointment on 8/2 but thought I'd get some real-life feedback vs. textbook. Especially since I haven't been textbook thus far, ha ha.
Thanks, Marcella
Forward 5 years. I was camping this weekend and my rectal pouch decided to flush mass amounts of clearish/yellow fluid, especially when my bladder was the littlest amount full. It slowed down and stopped after 2 days. My stoma was flushing high volumes, also. Everything was going at once. It finally stopped, but I think it's because I ended up severely dehydrated, so nothing more to flush.
Is it "normal" for the pouch to flush also? My Crohn's came out of remission this year. Is it possible to have a new start of it in the pouch, although it's retired from use? Could it possibly be a fistula to the bladder that self-sealed?
Also this time around, when I get dehydrated my knee-calves-ankle-feet blow up huge with edema. Is this normal? I have an appointment on 8/2 but thought I'd get some real-life feedback vs. textbook. Especially since I haven't been textbook thus far, ha ha.
Thanks, Marcella