Crohn's Disease w/ ileostomy, 48-year-old woman. Having constant upper back/abdominal pain, which used to happen only with a blockage, but now occurs every time I eat. Have had small gut dilated twice in the last three months, but no relief. Doctors want to do surgery and cut out 10 cm below my 'willy' (stoma), then start Remicade or Humira. Don't want to do either. Anybody out there with similar experience or have you tried the drugs I mentioned? Also, any natural remedies would be great to know about. Have done pretty well for the past 17 years since my ileostomy surgery, but haven't felt well since August after a trip to Mexico. Thank you in advance. Any info or suggestions much appreciated. Patty
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Read our tips to help you prepare for air, ground, or cruise travel with a stoma.