I am wondering if anyone on this site that has FAP has also been diagnosed with Interstitial Cystitis. I would like to hear from anyone who has either FAP or Interstitial. You don't have to have both or either one to respond to my posting. Also, has anyone on this site had a Desmoid Tumor. I would really like to hear from anyone about any of the above.
I have an Ileostomy because of FAP. Also, I have Interstitial Cystitis (a rare bladder disease). Last Sept. 27, 2011, I had to have surgery because of a Desmoid Tumor and had to have my Ileostomy relocated to the other side of my stomach.
Sandy