Reply by Past Member, on Tue Nov 29, 2011 1:59 am
I, like you, have had a variety of diagnosis. RA, Lupus, MS and many more. I am currently working under Dercums Disease (probably correct). I will read about sjogrens and scleroderma - two of many considerations for me - but I don't remember enough to understand about the relationship with ileostomy. I remember that it is all related to autoimmune system disorders - the body attacking itself. I have several of those including thyroid removal, and no more pigment. So nothing works correctly and I suppect it is all interwoven. I don't have anything more to offer just now but I will be watching to see how you are doing and if there are other related conditions as people respond. Interesting inquiry.
I have been on this site for a bit more than a year. After surgery I had no answers about anything. I found many answers - practical and support - from people here on this site. Lots of really good people.