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Question for women only

Posted by DH, on Fri Dec 02, 2011 1:15 pm
Hi, this question is kind of personal and embarrising.But I am going to throw it out there anyway.Back in june I had to have an abdominal perineal resection which is removal of rectum and anus along with a permanent colostomy. The problem is that ever since the surgery I have experienced painful intercourse to the point that I dread it. I have tried lubes but it doesn't work.It seems like there is a connection between the surgery and the problem.It feels like that when they sewed up my back end during surgery half my other opening got sewn up as well.I know that is not the case . Have any of you other women experienced the same thing
Reply by banshie3by5, on Fri Dec 02, 2011 2:03 pm
hmmm, I'm not sure, but I had a somewaht similiar thing. (adhesions from rectal stump surrounding cervix, unable to fix)   Adhesions from surgery could have tightened the backside of the vaginal wall.  I'd suggest seeing a gut/woman specialist (if they exist)
Reply by SallyWillard, on Fri Dec 02, 2011 2:14 pm
I had my rectum removed in Sept 2010 due to fistulas from Crohns disease. They also wanted to remove my vagina due to the damage on the back wall. I cried for weeks. Then I went to a surgeon who said he could leave my front wall but the back one was too severley damaged. So basically I have no vaginal tissue on the bottom side. Vaginal tissue is very stretchy, other skin is not. The doc said that every time I have sex I will tear and form scar tissue until eventually I will be the size I need to be for intercourse. Painful, yes!! But the thought of never having sex again was way more painful. Message me if you'd like to talk.
Reply by nancy, on Fri Dec 02, 2011 6:01 pm
i removed my colon and rectum and have a pouch instead that s connected to my small intestine. I think there s a difference in sexual experience. First of all i dont feel i get very wet. Sometimes i even still get some blood out like a virgin. Do the men that have sex with you come and still enjoy however?
Reply by farmwife, on Fri Dec 02, 2011 6:03 pm
I had the same surgery in April 2011, before the surgery I had radiation and chemo. I have also been experienceing pain during intercourse. The nurse said I would shrink from the radiation, but I did not have pain. I also think that my uterus tilted back. I am thinking of checking with the doctor, but feel alittle embarassed about this topic with my doctor(he is new to me).
Reply by fable3, on Fri Dec 02, 2011 8:18 pm
My gyn-oncologist prescribed a vaginal estrogen cream called "premarin" that I used during and after radiation treatment to thicken the vaginal walls and make them moist & supple again. I used to have issues with pain, bleeding, and dryness to the point that intercourse was unthinkable not to mention the follow up physical exams... I would leave my onc office in tears and 'she' would be sore for days! After a few months of using 1mg of Premarin cream 2-3/week, I am happy to say that I enjoy sex as often as I like without any dryness or bleeding and the exams are just fine now...

Hope this helps!
Reply by DH, on Fri Dec 02, 2011 8:47 pm
Thank you fable, I will ask my gynocologist about the premarin cream. And I thought the radiation may have played a part in the problem. My radiation oncologist didn't tell me that the radiation could effect the walls of the vagina ,but i read online that one of the side effects of pelvic/rectal radiation could cause the walls of the vagina to narrow. i experienced discomfort then,but it got worse after my surgery.I will ask my obgyn about the premarin cream.Thank you all for your replies. And Nancy ,to answer your question, I think my husband would enjoy it more if he wasn't worried about causing me pain.But he is patient and expects the problem to eventually go away. Happy Holidays everyone    Donna
Reply by ~traci~, on Sat Dec 03, 2011 1:12 am
I had the exact same problem as you...What happened to me is my uterous tilted after the rectume was removed.....becauseof this I was unable to have any more children Invetro or natural. Aswell as it has made it too painful to have intercourse and that was hard to accept but we learn to enjoys other things Smile
Reply by nancy, on Sat Dec 03, 2011 7:35 am
does anyone with this surgery still enjoy sex? Please some hope?
Reply by fable3, on Sat Dec 03, 2011 4:06 pm
Donna - You're very welcome! I know this isn't an easy subject to post on any forum. Thank you for being brave enough to throw it out there.
Reply by teriyaki, on Mon Dec 05, 2011 10:39 pm
Donna, I found they take the left side of my vagina out along with the other stuff do it's a bit painful at first, just gotta do more of it Smile good luck to u babe, T
Reply by Rabbit, on Tue Dec 06, 2011 1:05 am
What you have all described sounds like no fun. Although the surgery maybe a related cause, you should consider physical therapy but for the pelvic area. May sound weird- but there are are so many muscles in the pelvic bowl and like any place on your body, when one part fails us, other areas compensate. So some muscles tighten and don't work as they did before. There are physical therapist that specialize in this and it can be a invasive- but they help your body re-learn what it is suppose to do. They help stretch muscles that are tight, help you strengthen weak muscles and gain control over muscles you never knew you controlled. In my mind better then messy creams that may or may not help.

Best wishes
Reply by Optimist, on Tue Dec 06, 2011 4:58 am
i had the same problem sort of... after i had surgery i couldn't use tampons anymore cuz it would really hurt (i could get it in, but then i could feel it there and it would get more and more uncomfortable until i had to take it out, after only 30 mins or so). i went to a gynecologist and she sent me for a pelvic ultrasound. she thinks it is just some scar tissue and she suggested i use these stretcher things... it sounds kind of weird and i haven't ordered them, but basically it is a set of wax ..ummm... bars? lol. you put one in and just leave it in for about 20 mins each day.  each week you try the next size up so it's slowly stretching it out over time.  the wax kinda forms to your shape from the body heat...  i might try it out. she also said that just having more sex would probably help but i am not dating anyone right now. so ya, i would go see a gynecologist if i were you.  good luck Smile
Reply by bluejamiesmom, on Tue Dec 06, 2011 10:20 am
I sure hate to hear all this -- I just had this same surgery on Nov 14.  So I am still in healing process and have not tried sex yet.  I HOPE I do not have this same problem.  I did talk to my gynecologist before having surgery and he seemed to think everything would be fine afterwards.  I did not have to have chemo or radiation so I'm hoping everything will still operate the same.  Please let me know if you find any solutions cuz I would definitely be interested.
Reply by luv2laf07, on Tue Dec 06, 2011 12:41 pm
I had the same surgery in 1997.  I also had chemo and radiation.  After 3 months of radiation, the radiologist tells me that he forgot to tell me that the radiation would scar my vagina and make it very small.  He gave me 3 dilators in small, medium and large.  I was told to use them 3 times a week for 5 or 10 minutes at a time beginning with the small.  I also talked to my gynecololgist and she prescribed premarin as someone else suggested.  It helps restore the tissue to a softer and more normal feeling.  So after the dialating and using the premarin and using lube  I am able to have a better if not perfect sex life.  Hope you find some relief.
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