Do I need surgery for my hernia?

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tim1948

Seeing a lot of talk about hernia, and people who have had numerous surgical repairs. I have had a hernia for 3 years now but aside from the unsightly bulge around my stoma, it causes me no discomfort or pain. Do I need to have it looked at? How bad do they get before surgery becomes an issue?



Tim

mooza
Hey Tim, I heard hernias don't hurt. Have to tell you, mine were very painful. I don't know much about them for some reason. I asked when I was and still recovering, some hernia questions but nothing. I also have another friend from here who called up and said he was in so much pain. The egg-like size on his abdomen was painful. I am still waiting after 5 weeks to know why mine hurt so much. Maybe your bowel hasn't popped through?

No idea. I can tell you mine started getting bigger day after day in summer. Oops, sorry, Australian summer, about December 2011. But I was getting a lot of flu-like symptoms too. So if it doesn't hurt, I had my 9th op all up now and all my problems are still severe adhesion pain. I thought they might have given me a break on opening me up. I had 2 large hernias on the incisional site and a larger one on the stoma site. More ops, worse you get, as far as I'm convinced now. If it doesn't hurt, don't worry or get a scan! Up to you, matey.

Moozeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeee
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NJ1215
I have a hernia, but my doctor does not want to operate on it. About three weeks ago, I had terrible pains in my stomach. I called for an ambulance to take me to the hospital. I sat in a bed with pain in the hallway. They wanted me to redo blood work and do a CT scan that I had already done that week. I did not want to put myself through this again, so I refused services and checked out of the hospital. I took a cab home, and when I arrived home, I took an Aleve. The pain went away.

It seems to me that I need to watch what I eat. So now, I am being very careful about what I put into my mouth. I downloaded the list that someone posted on what not to eat, and it seems to be helping me. I was eating a lot of almonds and walnuts, which I believe caused a blockage.

I see my doctor on May 7th, and I will discuss the potential of having the reversal. It's a little over one year now. I was diagnosed with diverticulitis with a tear in my colon. I was also diagnosed with non-Hodgkin's B-cell lymphoma and had one chemo treatment. My white blood cells are stable; therefore, I do not have to do the chemo treatment. According to my doctor, I just need to schedule CT scans every six months and do blood work (CDC) every month.

Other than that one incident three weeks ago, I have not had any problems with my stoma. It's been a journey. You can live with this situation, which is very gratifying to understand. Also, I would like to applaud all the ostomy-mates for all their wonderful help and support. This is such a great site!!!! Thank you ~
supernan
Hi, I have a large hernia which 'just keeps on growing'. It started off as an egg, grapefruit, gala melon, honeydew and is now a giant watermelon!!! However, I am very lucky as it doesn't cause me too much bother. I wear a specially designed truss with a hole for the bag, and sometimes wear hernia support underwear on top, but find that this can cause pancaking at times. Physically, it is very unsightly, disgusting is the word I use, but I cannot have surgery unless it becomes strangulated due to other health issues. If for any reason I get a terrible pain in it (not often), I lay down flat and hope that this will straighten out any kinks that have formed. So far, this has worked!! I also have to watch everything I eat and have now just started taking Fybogel so as not to become constipated. I have to say that the worst thing about it all is that I have had to change to drainable bags as it is such a pain to take the truss off and such a hassle to change when you are out, and as I have a colostomy, it can be a job draining it (hence the Fybogel!! The only advice I would offer to people is that everybody should wear support underwear if they get bronchitis (which is how mine started), or are doing any DIY or heavy stuff like moving. It might not be pretty but it helps in the long run.

Mooza, I hope your hernias are on the mend, and don't go lifting any of those boxes at your supplies place!!
airforce1

I have hernia and not the first, not sure what to do.

 
Staying Hydrated with an Ostomy with LeeAnne Hayden | Hollister
Past Member

My hernia is about six months now, but only starting to really bother me 2ish months or so ago. I have to resolve one complication, then onto repair...

tdbm

Today I saw my specialist for a follow-up after 5 weeks of radiation. I asked him why the stoma side of my stomach was so much farther out than the other side. The whole left side of my stomach around the stoma sticks out much farther than the right side when I look down at it. I asked if it was a hernia? He said it is, and I asked why it doesn't hurt and he said the larger ones don't, and I should be glad it's not a small one. I wonder why small ones hurt and large ones don't?

I've made sure to hold my hand firmly over the stoma area when I am getting up, turning over, or doing something that could strain it, but there it is anyway.

I was looking at hernia support belts online and put off getting one, but now I think I'd better.
Please recommend the one you like?

tim1948

Sounds just like what I have. Looks like a softball is under my stomach area. Doesn't hurt. Oh well, something else that we have to live with.

Texas Girl

Superman, I also have a very large watermelon. It doesn't hurt me. Once I did eat a bag of peanuts and I had to call the ambulance to get me. There was a peanut blocking the way. I will never eat another peanut of any kind. My doctor doesn't want to do surgery because I am a smoker. But I also have a urostomy and don't have anywhere to move my stoma. I could live okay and deal with it all if it wasn't for the hernia. I am so embarrassed to go out in public. I look pregnant on my left side only. I have a hernia belt, maybe I should start trying to get used to it.

tdbm

Hey Texas Girl!

Please don't feel embarrassed!! You really look very nice!

There are ways to dress to camouflage things like that and it looks like you have found one of them. I know how self-conscious I feel too, so I am trying to adjust my wardrobe. Were you wearing the hernia belt in that photo? Good idea. I guess I'd better get one also.

Nice photos. You have very little to worry about.

T
Texas Girl

No, I am not wearing the belt in that photo, but it is far away so you really can't see it. I did go drag my belt out of the closet this morning. I do have it on now, and really it is very comfortable. I should have been wearing this a long time ago.

tim1948

I stopped worrying about the way I look on Nov 13, 2009 when I woke from my surgery and saw the stoma for the first time.

Texas Girl

Tim, I am sorry to hear that. I think you should have a better outlook on your appearance. I don't know what you look like, but just because we have a stoma shouldn't mean that we can't or shouldn't look nice. I hope you are happy and have a blessed day.

Shash

I have a hernia belt from a company called Nu-Hope; the hernia belt is excellent
and they are very helpful regarding deciding on type and size.
Best of luck...