July 3 I saw my doctor for a check-up. Everything is okay. After the exam, he gave me my options:
1) Do nothing
2) Remove rectum stump and sew up anus
3) J-pouch (I know nothing about J-pouch and am terrified)
As we were talking, he said with a J-pouch, I could expect 8-10 bathroom trips a day and occasional anus leakage. I told him I just drove 1 1/2 hours to see him and did not have to stop once for a bathroom visit. When I first started seeing this doctor, on the same trip, I would have stopped 3 times. I do not need to know where all the bathrooms are, and it is really nice. I can finally sit and watch a 90-minute movie without having to pause it twice to go to the bathroom. I sleep pretty much all night from 10 PM to 5:15 AM without having to get up twice. The list of small things I am now able to do because I have an ileostomy is really quite long. Sometimes I feel a little guilty because I realize things are going quite well for me. I have adjusted to my stoma quite well and have really had very few issues with it.
The last year before my operation, I was caffeine-free, gluten-free, and dairy-free. That was a suggestion given to me to try and make UC tolerable, but it did not help much. Now I eat fairly normally. I miss fruit (apples, oranges, grapefruit, etc.). This was the first thing my doctor said: "We are getting you eating as normally as possible." When I was at my worst, I was scared to eat. My stoma, I believe, gave me back my life. All I have to do is live it. I wish I had the confidence I read other people have. I am still a bit nervous about my stoma and the reactions of other people. I really should not care what they think, but most of us willingly or unwillingly do care.
Thanks, Ed
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Learn about special travel considerations for your ostomy type, so you can be worry-free.