Meet & talk to fellow OstoMates 20,312 members

Rectal pain after reversal

Posted by latina63, on Sat Mar 16, 2013 5:36 pm
I had a temp ileo in 2011 for 11mons due to a Carcinoid tumor in my rectum. I had a Lower Anterior Resection with Meso Excision (lymph nodes removed). I have been reconnected for 5 mons and overall things are doing well.
I would like to hear from others who have had this type of surgery and still have your rectum and colon. I have pain sometimes and pressure like the feeling of something down there. I understand that it has to restretch as my rectum is shorter now. It comes and goes and definitely getting better but would love to hear similar stories.
Reply by jodelin, on Sun May 26, 2013 11:17 pm
I was reversed on 22nd and still fresh so I don't know if I have much to offer.  But maybe we can help each other out.
I am missing a foot of my colon and 5 ft of my small instestine.  Everything else is left, radiation damage due to tumor low in colon (higher part of rectal tissue).  
I have not been eating much but kind of feel like I have a blockage except I am still going to the bathroom very often so it is probably pain of food going through my colon and getting used to it.  Did you have that feeling?   Or maybe I have a partial blockage.  
Eating some toast but that seems so dry, cream of wheat, crackers with cheese, and some potatoes and some mac & cheese.  And water and gatorade.  
My incision hurt like crazy until today.  I am very swollen.  
Wearing depends and using Calmseptine for the sore booty.
Hope all goes well for you.  And, hope your pain subsides.
Thanks for sharing.
Reply by latina63, on Fri May 31, 2013 11:14 pm
Wow! Sorry it took me so long to get back. I go next week for a EUS test, kinda like a colonoscopy but they don't go the whole length of colon and it has an ultrasound on the end of the scope, kinda high tech stuff. Doctor wants to check everything and see if I have any scar tissue. Bowel movements are not as frequent any more and the pain has subsided so much! Booty still hurts occasionally, I can't sit for long periods of time cause it starts to ache. I still get the dumping syndrome but not near as often, maybe 2 times a month. It has now been 7 months since my reversal and 18 months since my LAR surgery. Good luck and hope you are doing well.
Nora
Reply by latina63, on Fri May 31, 2013 11:20 pm
Oh and I am able to eat most of everything now and I LOVE Calmopseptine! That helps my booty so much. The digestive system is so sensitive and it talks a long time to wake up and function normally. Hopefully that helps a bit.
Reply by jodelin, on Sat Jun 01, 2013 1:28 pm
How long did it  take to quit having accidents and be able to use that muscle successfully?
I am still  having accidents and I am about a week and a half out from surgery.   I was trying to strengthen the muscle but now it is very painful.  Calmoseptine and hemorroid cream Sad.
And, were you able to obtain the success of controlling your bowels by using fiber supplement or immodium?  I don't use either - dr wants me to try for 2 weeks to control by diet first.
And, when does the swelling in the tummy subside?

I have lots of questions, don't I?  I am so happy to be reversed but I am very anxious to get back to a normal life where I can go where I want and wear what I want.
Reply by latina63, on Sat Jun 22, 2013 11:22 am
Well that all depends on how much rectum/colon they had to cut out. Frankly I never had any accidents, they took about 3" of my rectum and 7" of my sigmoid colon for a total of 10". For the first month I had to go a lot but I could hold it without an accident pretty good.
NOW, for the FRANK truth...it takes a long time for the colon/bowels to heal up and function properly. My doctor told me it could take up to 18-2yrs before everything stretches out and the colon learns to function properly.
I will liken it too your arm, say for example it was tied to your side for 1yr and then untied again...it would take your arm a while before it learned to function properly..well our insides are a lot worse.
The problem I have most now after 8months is the pain in my rectum itself and the dumping syndrome which happens only about twice a month. It used to be every day but now it is down to twice a month and eventually it will totally go away.
By dumping I mean my colon will have spasms and completely empty out (sore butt for sure) it used to take about 30min but now it is down to about 15min and it ALL comes out!
I am finding that Metamucil everyday helps to regulate if you can stand the gas for the first few days.
As far as the swelling it took me about 1 month before tummy was down.
Unfortunately with any surgery on the bowels you have to be patient, I made myself so sick with stress trying to speed things up. When I finally stopped worrying about it and let my body do the healing, I started to heal, everybody is different thou....good luck with everything and keep the questions coming!!
Nora
Reply by jodelin, on Sat Jun 22, 2013 11:31 pm
I am missing 3 cm of rectum and 9 inches of sigmoid colon.  I was diverted for 16 months.  
I am 4 weeks and 3 days out from surgery and still having accidents!!  Very frustrating.
I do pretty good when I get the metamucil dosage right.  But, I just recently changed from powder to capsule form so had to adjust for a couple days.  Back to accidents.
I use imodium a lot.  More than what bottle says to use.  
It seems like anything with the intestines take forever to heal.
And, I think you are right, the more I want to push healing the more frustrated I get and it seems to delay the process.
I am hoping the metamucil will put an end to the accidents.  Been exercising the muscle like crazy and it seems to be getting better.  
The swelling kind of baffles me.  I am still kind of swollen, but I suppose until the bowels are no longer irritated they will be swollenl

thank you for all your answers.   They helped a lot.  I am a bit concerned that I am having accidents still.  I thought it was kind of normal, but apparently not.
Will check in once I have been on metamucil for awhile..
Reply by latina63, on Wed Jun 26, 2013 5:29 pm
I lived on Imodium and crackers for the first 3 months! Now by you saying diverted I take it you had an ileostomy for 16 months. That might be the reason why you are having accidents, I had mine for 11 months. It might be taking your colon a little longer to adjust. By me saying I had no accidents does not mean I didn't have to go! It just took me longer to recover from my second surgery as they had to repair 3 hernias and they also checked my liver, so I had to be cut open again, they had to cut higher for the liver so it was very painful Sad
So by saying all that I meant that I was real close to the bathroom for the first 2 months!
Now if I can just stop the swing (hard to soft) and the cluster (never get it all out in one sitting) bowel movements, I would be so happy!
But the pain does seem to be getting a little better so I will be thankful..
Nora

PS Peanut butter and banana sandwiches really helped my loose BM's, just a thought if you like that sort of thing
Reply by jodelin, on Sat Jun 29, 2013 3:17 am
latina63
Sounds like you have had a lot going on.  The second surgery, liver issues.....
They did have to do a few things to enable me to be able to have the ileostomy take down.
I had that anastomic leak which wouldn't heal.  What finally helped it heal was a flap surgery.  They took half of my stomach muscle and wound it through my pelvic area and around my colon where the original resection took place.  They had cut open the pouch created by the leak and cleaned it out and wove the muscle through that opening and sewed to colon.  
Healed up the leak.
I am now over 5 weeks out and still having accidents.  Hoping time improves that.  
Do the exercises mentioned on the Ostomy of America site - basically really strong kegel exercises.  But, still not strong enough muscle control yet.  It is amazing how quickly your body gets used to not functioning properly.
I have a question about fiber.
When I was taking two metamucil 3 times a day I had fairly firm stools in the a.m. but not the rest of the day.  Then, without any changes they loosened up and no longer had firm ones in the morning.  Just fairly formed ones.  Diet wasn't changed.
Upped my dosager to 3 pills, 3 times a day.  No change.  I use a lot of imodium to control the stools.  Probably double what it calls for on the jar.  But otherwise I am in pain from going to the bathroom ALL the time and I spend all day in the bathroom.  
I wish you the best or anyone that reads this.  
Any ideas are greatly appreciated.
* Please, do not post contact information like email, Facebook or Twitter accounts, or phone number. These will be removed by the Administrator.
All times are GMT - 4 Hours
Currently online: 6    
6 visitors