This happened in November 2012 and I have had hardly one single day of real rest and relaxation since the ostomy/stoma as done (it was a life or death decision). It was either create the ostomy/stoma and let the bowels rests and hope to repair the fistula -if it doesn't repair itself- and have the ostomy reversed in February 2014 OR... the other option, NOT do the ostomy/stoma and let the fistula slowly leak bile into my body cavity and all my organs slowly die off one by one...
My problem, other than the obvious fact that I now poop from a hole in my stomach, is getting my two piece Convatec ostomy apparatus to work properly.
My stoma is about the size of the tip of my pinky finger and about 1/2 that in width. It is very, very tiny... it is also and "innie" stoma and not an "outtie" stoma.
I have so many problems with it I don't know where to start.
I can't stand the smell. It makes me so sick that I gag the entire time I am doing anything that involves cleaning or changing it.
Even though my bags have charcoal filters, I can still smell the odor when my bowels begin to move and dump into the bag or just when gas/wind passes... the stench makes me gag.
My two piece apparatus I wear works some days and some days it doesn't work at all... the problem is that stool will get under the wafer somehow and once it does it sits there and the bile eats away at my skin. My skin has been so red, raw, bloody and probably slightly infected that I have had to remove the bag for 2-3 days at a time and stay awake in order to catch the stool when my bowels move/dump with tissue and flush it rather than wear the apparatus since my skin is so irritated and so in need of a break and fresh air.
I am NOT cutting the hole too big and I am using the extra barrier rings but still, the bile will somehow get under the rings and eat away at my skin.
I don't eat much anymore because eating means waste and waste means the bag and the bag means having to mess with it (smell, chaning, clean, etc...) and that means I get frustrated and sick.
It's like a vicious cycle that I am not sure how much longer I can bare it repeating.
Currently I have the Fistula bandaged and covered properly as it is supposed to be, however, the stoma is open to the air with nothing but folded paper towels over it and my boxer shorts to hold them against my body.
I am doing it this way because I am able to keep ointment on the skin to clear the skin up from the last time the bile destroyed it, so it can get some air and breathe and because it is so much more comfortable than the ostomy bag and so much easier, really.
If anyone has any suggestions, please let me know.
Thanks in advance.
Last edited by Anise on Wed Mar 27, 2013 7:41 pm; edited 1 time in total