I find when Im going to be doing something energetic, I have a ostomy waist band to keep the bag close so it does not flop about too much.
And the usual loose clothing, helps stop the bag pulling on your skin. As im sure you know.
We have "comfizz" here, (England)
They do three grades of protective clothing from light waistbands and vest type garments for hiding the bag on a night out, to protective clothing for anything... rock climbing,rugby, but they are not subtle.
I think the U.S version is stealth belt but im not sure.
I rarely use my support belt now i don't feel i need it so much.
As its cold here and i never wear tight fitting clothing lol.
There is small shield you can get over here that i have seen no bigger than your hand and fits on to a belt but they are $80 on some of the U.S websites.
In the U.k we can get that sort of thing free and if you want to pay for it its only a £10
for example we have this.
Not sure if it will suitable for white water rafting but it will stop the stoma from taking a blow.
Now that will probably fit nicely in the waist band if you can make the pocket to fit it, it might be more comfortable than the small belt (which isn't included)
I (ileo Dec '09) just have my usual 'replacement stuff' with me. I've managed to get it down to a very small light compact package (flange, 2bags, wipes, bit of tp, disposal bag). That package goes into my everyday purse or into a backpack.
Plus if hiking, I carry an empty small mayo jar (plastic and light) for emptying. Many people feel ok about emptying in the bush, but I like to carry out all that I bring in . I've even used that set-up for emptying in the car during a long drive when the need comes up with no washrooms around.
Hope that helps.
For changing my appliances, I do pack extra with me when leaving home site. Bringing disposable dry fast wipes (I like SafeNSimple) which cleanses well, dries fast and does not affect the new appliance sticking), pre-consruct your new change as much as you can adding the gasket ring already to go and put the no-stick 'lid' back over the appliance package. Bring the supplied product toss bag and you should be able to change without a sink or much hassle. If you do have to do it in front of anyone, you can step to the side or they will have to just love you more than they already do! In various weather conditions with high humidity, having the most portable products is easier. For swimming, and as other's have said - an ostomy belt is helpful. You can get really soft ostomy belts from Hollister. I have peristomal hernia going at all times - and surgery is a waste of time because they just come back - so - I wear a Nu Hope hernia support belt. The belts are covered by those with insurance. But you have to go onto Nu Hope's site and look at their offerings, and call customer service to work with you as you look because it is a bit confusing. I love their breathable belt styles, and you can get your perfect stoma cut size hole and widths. I do the flat panel style, but there are a lot of options. This company even takes 'shape wear' you can buy and send to them to put in an ostomy cut ring into it!
I agree that a belt helps my appliance last longer both home and away. I use the Hollister products with 'floating flange', and the hernia belt takes that feature away, but I am more secure from floppy bag as well as having a longer lasting wear time.
Camp, boat, swim, be in nature - and it'll be just as awesome as ever! We rough camp too, and I'll never give it up! HAVE FUN!
I've had my ostomy for my entire 47 years. I have also camped, kayaked, canoed, snowshoed, backpacked, winter camped, cross-country skied, and gone on extended kayak and canoe trips in the BWCA and Quantico Providential Park in Canada.
I have never had any problems with regards to the ostomy doing any of these things. However, one does have to be prepared. There are some very good tips already posted, so I'll refrain from repeating them. I'm sure you've heard of Pelican Boxes, (perhaps you already have one), and I have one that is just for my ostomy supplies. I also place that box in a dry bag, just for added security. Even though I may only need one appliance every three days, I pack on for every two days, plus one extra. One would not want to use their last bag on day five of a seven day trip. I won't go in detail of what I place in that box as you already know what you will need.
Since I have an urostomy, my "nature calls" are typical of any other camper. My only difference from them comes from the actual bag changing. I pack out all trash, and this includes the used ostomy bags, so I also carry several small trash bags that I can tie-off and place in any larger trash bag. At one time I used to throw used bags into the toilets in the outhouses at campgrounds. I discovered that when the time came for park employees to pump out the "debris" from these outhouses that the ostomy bags jammed their pumps and clogged the hoses, so I quit that practice and dispose of them as I would regular trash. Of course it goes without saying that one that was respectful of nature would also not leave or bury these plastic bags in the woods.
As far as the actual strenuous activities, as you go along, you are going to learn what activity leads to what problems with the ostomy. I was never a big fan of wearing a belt until I started getting serious about kayaking. With a proper kayak stroke, one does need to twist the upper body and this led to me needing to wear the belt while doing that. Now, I always wear a belt regardless of what I'm going to be doing.
Final words; you already have made the most important step in dealing with this and that is that you are not going to give up your lifestyle just because of this "change". Any battle is 95% mental and if you have already won that part...
I had a colostomy 3 years ago. Last spring I completed a 6 day trip on the River Tay in Scotland with 3 friends, after a 'failed' attempt the year before (due to atrocious weather). It was cold, wild and fantastic. I've written a short blog below if you're interested.
The main things for me were to take plenty of ostomy supplies, have a tent of my own and understanding/supportive friends.
I seem to be heading for a ileostomy now so no more trips this year but I was skiing in France in February and rock climbing on Lundy Island last august.
good luck with your adventures
ps good to see so many outdoorsy ostomists.... I though i was the only one!
SariJo - I LOVE HERMIT ISLAND! Isn't it gorgeous? I had one of the oceanfront sites the last time I went Usually I go up around Jackman and the Quebec border - I've never camped in the Rangeley area, but maybe this year?
I guess I'm more intimidated by roughing it with an ostomy more than anything else - but my friends and family are really supportive. I've tried to get the NuHope belt approved by my insurance - I have a hernia, too - but they denied payment for it Oh well. I think I might buy one just out of pocket. Seems like a worthwhile investment for all the things I want to do this summer