I've been checking in, on and off, to see if anyone has been able to give you some advice regarding your eating issues and your stoma. I don't have the answers for you, and I don' know why you would be throwing up, but if it's continuing you should definitely see your gastroenterologist.
As far as your bag filling quickly, have you tried foods to thicken your output? I know rice, applesauce, tapioca pudding work for me. I'm not sure if you drink coffee, but it can be like turning on a faucet after that! Make sure you aren't getting dehydrated. I'm pretty new to the world of ostomies, and not sure if this helped at all. Hope things have started to improve for you.
I found a meal with lots of mashed potato helped a lot -- watch out for any food additives -- I eat marshmallow and peanut butter sandwiches that also help -- coffee is a disaster but I now go caffeine reduced or free and enjoy a cup once a day if I feel the desire - tea is ok but I use lots of honey and milk which makes a difference -- crackers and cheese (not processed) - another favorite is milkshakes and real fruit popsicles - I just work at it and look for ideas that taste good! I wish you the best -- it will get better... I have also been told that everyone will find different things that work --
God luck - Ewesful
Does the hospital where you had your surgery have a WOCN nurse and a dietician? They should be able to give you all the answers you need. I had my surgery at Sarasota Memorial, and they were absolutely fantastic.
Bananas and oatmeal also help to thicken up the output.
Thru process of trial and error, pastas, rice, crackers, bread, pretzels, peanut butter, they slow my output down some and thicken the output. I know some say these food choices are not good for you but hey, at this point in my life taking care of my "Mary" is more important. I do this all in moderation since I don't want to get a blockage either. As for liquid, it would be an understatement to say I drink 24-7. I associate that to my meds. I do drink a cup of coffee in the morning and I have never had a problem. But YOU have to find, experiment the food and drink your 'gift' is comfortable with. Seeing a Dietician and an Enterostomal Nurse wouldn't be a bad idea....you can always make adjustments as things improve. Hope you get things straightened out! Once you do, believe me after 42 yrs with an ostomy, you will realize that had you not had the surgery, you could be in terrible pain or as in my case, a statistic! You'll get it right soon......good luck.
I had part of my large bowel removed in my first surgery and then had to have most of my small intestines removed do to ischemic bowel disease and a blood clot, so I've had a lot of surgery done. I could of died twice. I prayed before surgery for no bag, that I didn't want to live if I had one, but I lived and have a bag. Just not sure why things are working out this way. I'm not good at coping with all this and most days I've had enough and keep saying, I hate this bag, I hate this bag, I hate this bag...I'm hoping that things do settle down for me since it has been four months now...
My ostomy nurse nurse comes tomorrow and I'm going to have her sit down and try to help me figure all this out... I hope she has some answers..
My big wound has been hurting this week to for some reason. It hadn't been at all for awhile..(its big/deep enough you can put 2 baseballs down in it) so trying do deal with that too..ugh..
It's amazing how your life can change in a day.
I looked online today to find out just what " normal daily output" was for a ilieostomy person and it said 500 to 1000ml which is about 28 to 35 ounces.. Well that's not good for me as after 9 hours I was already at 46 ounces. And we're suppose to have 3 1/2 quarts of liquid to drink daily...that's about a gallon. I talked to my surgeon today and he knows my output is high and wanted me to measure it for 24 hours and let him know. I called his office to ask the nurse about my low B12 and the lady let me talk to my dr cause he was just walking past the reception area so that was a shock lol..
I'm going to get some pepto bismol and see if that will slow the runs and help coat my sick tummy too. I've tried about everything else...
I'm glad to hear that your ostomy nurse will be seeing you. Just wondering about your wound, and what's being done to heal it. Does it require packing, or is there a woundvac on it?
My ostomy nurse said to not worry so much it will get better. I have a lot of healing to do yet. She said to give it time. I'm not a patient person and all this is hard on me!
try stoma seal and an eakin for skin
I'll join with everyone else, to tell you that it's trial and error for the first few months or longer. I have my ostomy for more than 50 years, and was only 15 when my "adventure started". Foremost, what I did learn is that " what you say to yourself, really does matter".
If you "hate" hate, hate....the bag,/ or the ostomy.....and tell that to yourself often enough, it will be self defeating. As a teen, I came to understand that my ostomy & all the paraphanalia, were my "badges of survival....
For the last 10 years or so, my "digestion" changed, or so I thought, and was fighting off the runs and dehydration regularly... It turns out to be sensitivity to dairy....and as much as I love cheese, dairy, ice cream etc.....no dairy = no runs for me.... I do indulge a bit on ocassion....but don't like the outcome...or increased output, or the inevitable dehydration.
So....I drink lots of water....now eat whole grain bread etc.... oatmeal for breakfast, to get the day off to a good start... I'm just 65, and am discovering a "new" way of eating....more vegetarian/ vegan based ......using healthy oils, and new cooking methods. I've been made aware of diets for people with Auto immune issues, ( I had ulcerative colitis) and although the diseased colon is out....other areas of the body can get "inflamed". It's a systemic condition....as is Crohns. I wish you well......as you discover a healthier future...
With my smoothies, I have been putting spinach, blueberries, strawberries and a banana with flax seed. That will stay with me about 4-5 hours and really thickens my stool. This machine pulverizes everything, so I don't have to worry about blockage. I miss my lettuce and surgeon told me I could eat it if I chew well. I try to eat a hard boiled egg with my salads and skin my tomato and pick out seeds. Load it with cheese, I love Gorgonzola, and cream dressings. I used to love milk, but it seems to go right through me. I have never ate as much as I have been eating lately and I do feel like vomiting too, although, I haven't had to. It seems I get very hungry about bed time. So I have an ice cream bar or any ice cream with hot fudge topping. All dairy doesn't seem to bother me, just plain old milk. I am gearing up for surgery #2, which will be a hysterectomy. I am 55 years old. But they tell me my uterus is like stuck to my colon. If I am lucky, I will have that removed and have my reversal. If not, my third surgery will be at the end of December. I have to go see a OB-GYN specialist next Monday and see if they can do all this at the same time. I need to have about 8-10 inches removed from my lower colon, due to narrowing. Still confused as to how this happened because I have never had problems with my GI system.
If you decide to add the supplements that I have mentioned, take them after a meal, as I have had whole pills come out of my stoma. Also, I have added a daily yogurt. I was getting really tired of practically living in the bathroom emptying my friggin bag. Now, I have a little more confidence when I go out. Hope this helps, because as several other ostemates have stated, it is all trial and error. Stay away from spicy food. Imodium is good to have on hand, it will slow your stool down too.