Pros And Cons Of Rectal Stump Removal

SeanMc · 2013-09-18T00:39:22-04:00

I have been diagnosed with UC since I was 21 years old. (39 now) It started as an occasional flare up and ended up with a full colectomy in 2010. After going septic 5 days later, 6 days in a coma, 3 months in the hospital, and a completely different lifestyle, I am still experiencing complications with fistulas. I have had fistulas cut out 4 times over the last 3 years, but they just keep coming back. I am told because my rectal stump still has UC. I now have 2 active fistulas; 1 at the top of my butt cheeks (for lack of better terminology) and 1 at the lower end of my butt cheeks which is new, very painful and about the size of a nickel.So I basically have 2 options: Hope that sometime soon my rectal stump is healed and I can have reattachment surgery (Which if anyone is aware of anything that will help with healing I'm all ears) or have my rectal stump removed. Which means I'm a bagger for life. Which I've learned isn't the end of the world, but obviously not ideal.I would like to hear from those that have had their rectum removed, both pros and cons, to help in my decision.Thank you

SeanMc

What do you guys mean by butt burn?

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Juuust_James

If you have a severe case of IBD or have been reconnected but now have a "short-bowel", your output is very loose and acidic because of the absorption loss. So, when you're going to the bathroom countless times a day, your sphincter can and will get very sore from the acidic output and frequent bathroom trips.

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Why Join MeetAnOstoMate?

First off, this is a pretty cool site with 33,424 members. Get inside and you will see.

It's not all about ostomy. Everything is being discussed.

Many come here for advice or to give advice 🗣, others have found good friends 🤗, and there are also those who have found love 💓. Most of all, people are honest and truly care.

Privacy is very important - the website has many features that are only visible to members.

Create an account and you will be amazed.

SeanMc

First time I've heard of that. Thanks for the info.

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Summertime Care For Children With Ostomies

Hollister

Are you a caregiver for a child with an ostomy? In the summer months, this can become more challenging, thanks to heat, humidity, water activities, and travel plans.

Learn more about caring for children with an ostomy on vacation.

ZaliBee

I've had a complete done. Colon, anus, rectum- removed. I still get "phantom" BM's where I'll have the feeling like I desperately have to go. My doc told me that it's just phantom like when someone who's had an arm removed will swear that their wrist itches.

Recommendation was to sit on the toilet and push. I thought it was silly but I started doing just that when I felt the urge and it passes quickly. If I ignore it, I'll have the urge for hours, which will drive a person nuts after awhile (laughs)

Sit and grunt, you'll feel better....

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mooza

Yes, I also had this done due to Crohn's. My so-called butt closed and leaked water for 6-7 months. I wish I never had it done or I had it done 5 operations ago. :(

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Staying Hydrated with an Ostomy with LeeAnne Hayden | Hollister

mooza

Wow, I haven't been on here for awhile. Good luck everyone.

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friend to all

I do hope you all get the help you need.

It's a shame hospitals don't give stoma patients a contact number for questions they need to ask.

Whoever set this forum up, a huge thank you. It's so valuable to have someone/somewhere to turn to! 👏

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Pros and Cons of Rectal Stump Removal

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