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Recent ileostomy and passing stool from my rectum - worried

Posted by tudibird, on Fri Nov 01, 2013 1:37 pm
Once again I am turning to you all for advice.  My surgeon had told me that once in a while I might find that I pass mucus from my rectum even a small amount of stool.  He did remove about 1/3 of my rectum but said I still have enough of a functioning rectum that this could occur.  Well, in 3 weeks since my surgery I have now passed stool 5 times.  This seems crazy to me.  It's always a small amount but still I really don't get how it's happening at all.  Has anyone had this experience and this often??  Could someone please explain to me how this even happens?  Is there a point at which I should be concerned if I continue to pass stool this often?  Thanks for any input or advice you can give me.
Reply by Juuust_Jim, on Fri Nov 01, 2013 3:27 pm
the passing of Mucus while recovering drove me mad I was slated to j-pouch so while the pouch was healing and had the temp loop ostomy to divert the stool - eventually due to post op problems -I wasn not able to complete the re-connect. For some idiotic reason -when they gave me the permanent ilie stoma -they left the unused J-Pouch still connect to my rectum! -so for nearly 5 yrs i passed muus daily. I eventually started draining it with a catheter before bed, and still sometimes would wake with a wet bottom. and once or twice a year i got "pouchitis" and would get a reddish color to the muucus and of couse cause of the infection the amount of mucus would increase dramatically -so then would have to go on a week of Antibodies to clear it up. FINALLY after 6 yrs I had some down-time in my life and told my Dr "GET THIS THING OUT! NOW!" LOL so once finally getting my rectum out -been smooth sailing ever since Smile
Reply by scotiaman, on Fri Nov 01, 2013 8:50 pm
HI...don't understand why the medical professionals don't advise on this issue before turning people loose following colon surgery but it happens all the time...I went through various degrees of this excretion following my colon removal for U Colitis...with the rectum remaining, the cells within the walls of the rectum continue to reproduce ie replace AND mucus cells continue to be produced..at some point they gather in the rectum and are released...if as I experienced the problem the rectum continues to be affected by UC, then the mucus secretions will be heavier than should the rectum be healthy...this is a VERY common issue...if you find the frequency of elimination is increasing your DR will likely recommend some medication, but nothing really unexpected is happening...its just the nature of how the cells within the rectum reproduce and removed from the body...
Reply by tudibird, on Fri Nov 01, 2013 11:04 pm
Thank you both for the responses.  I fell a little more at ease.  I couldn't agree more with you Scotiaman that the medical professionals fail miserably to prepare us for this.  I was told that I "might" pass some mucus once in a blue moon.  WTF.  I continue to pass stool every so many days.  Do have one more question for either of you - what if it looks like there is a hint of blood in the stool?  Should I be alarmed or just to be expected?  I had a little blood today when I once again passed some stool.  Thanks so much for your input.
Reply by Crohnsguy84, on Sun Nov 03, 2013 10:02 am
How much mucus is normal? My underwear is always wet and stained. I need to wear pads because mucus dribbles out all day.
Reply by Primeboy, on Sun Nov 03, 2013 4:35 pm
                                 
Crohnsguy84 wrote:
How much mucus is normal? My underwear is always wet and stained. I need to wear pads because mucus dribbles out all day.


Croh, I was going to say, "Depends", but that response could be misinterpreted. Some days I have a lot of mucus flow; and, for me, it may be a matter of hydration. The more I drink, the greater the flow. I've also had to wear pads, etc., which have not worked well when I am out for long hours like on the golf course.  

Recently, however, I found a new technique which effectively contains mucus dribble for hours. I roll a Kleenex tissue into the shape of a cigarette. Then I bend it in half, coat the bent end with Vasoline, and insert it into the anus for about one inch by pushing the bent end in with my finger. (Caution: fingernail must be clipped.) The tissue will generally remain in place until extracted hours later. I use this technique for only part of the day because it may not be prudent to use a permanent blocker. Incidentally, when the tissue is extracted, there isn't any release of built-up mucus. I think it just gets absorbed into the body.

Anyway, I now go out golfing with assurance that I will stay dry. I suppose this gives new meaning to a popular expression: plug and play. Good luck with your situation.

   PB
Reply by Penguins7, on Sun Nov 03, 2013 5:24 pm
I don't have problems with mucus flow but I have had an annoying abscess that has been draining for the past 11 months.  My technique is to stick a pad to my underwear and take a 4X4 gauze and scrunch it up and place in rectum area as a wick.  These 4X4 gauze squares are very absorbent.  I hope this helps.  PB I am a golfer too so I know what 4-6 hours can mean.   Penguin
Reply by Wilski, on Sun Nov 10, 2013 11:22 pm
The mucous is normal as is the blood. I have an ileostomy for 9 months now and experience the same. I even passed what appeared to be stool.
Last Wednesday I had a colonoscopy which was fine. However I have diversion colitis which is typical in ostomy patients. The colitis is an inflammation which explains the traces of bloody mucous.  Don't worry about it.
Reply by gvmackie, on Mon Nov 11, 2013 10:13 am
I have had an ileostomy since 1998 and, inially at about 3 month intervals I had a discharge from the rectum.   Medics said "this happens".   I was not informed about this after my surgery post op.   Latterly the intervals between discharges has been about 6 months.   Sometimes discharge is quite heavy, smelly and, on occasons, some blood is visible.   When in 'discharge mode' I put absorbent incontinence pads in underpants.   The discharge lasts about 7 days.   Of late I have found that the intervals between discharge have lengthened by taking IMODIUM tablets or own brand equivalents.   Drs do not recommend this but I found a medical book stating that this practice was accetable under the circumstances.   I regularly take 2 of the tablets daily.
Reply by tudibird, on Mon Nov 11, 2013 9:45 pm
Thank you all for the input.  I am much more at ease now.  I have begun to take a stool softener (which the medical staff also failed to tell me to do until I called 4 weeks later) to ease the discomfort that I was sometimes feeling when trying to pass the mucus.  This has helped considerably.  Thanks again guys.
Reply by Jabid, on Sun Nov 24, 2013 2:40 am
Hi Friends,

First of all, I would like to say I am so glad that I found this site as it has answered some of my great concerns, particularly in regards to release of mucus. I had a permanent colostomy done on the 3rd of July, 2012. I am 25 years old, from a tiny island Republic of Fiji, where we certainly lag behind in medical infrastructure. My case is rare, if not, almost unknown here. I had to have my surgery done in India where I spent 6 months of long, gruesome and intensive treatment. After the surgery, I went through intensive chemoradiation, which was the hardest and most difficult part of the entire treatment.

Nonetheless, I somehow managed to pull through and now life is carrying on, but not like as what it used to be. I find it so difficult to sustain myself especially with the increasing cost of sourcing the ostomy materials from overseas as we do not have them here. I have tried several brands and found out that Covatec's 2 piece system works the best for me. I also do irrigation and it helps a lot, especially, when I am at the office.

One of the other and the major problem which I face is skin irritation around the stoma. It becomes so hard at times that it gets almost impossible for the wafer to stick on the skin and I have to heavily plaster it with adhesive bandages. I would very highly appreciate any suggestion/solutions for it.

I thank you all for taking out your valuable time in reading my post.

I hope to hear from you good people.

Take care and keep up with your health.

Regards
Jabid

PS: Please do not mind my English. English is a second language for me. Smile
Reply by Warrior6391, on Sat Jun 23, 2018 9:23 am

Hi folks,

I have had my ileostomy since February 2018. All has been going well. However, last night I awoke and my stoma bag was almost about to explode as it was full to maximum capacity (no pain and no other warning). I got to the bathroom and successfully emptied my bag. Then all of a sudden, for the very first time, I felt material coming out of my rectum and it was not the occasional mucosus but fecal matter. Not a great deal and all fumdamentally liquid. Can someone explain how  and or why it happend and how concerned should I be?

 

Thanks my friends.

Reply by sassie, on Thu Jun 28, 2018 9:09 pm

my Doctor said its normal, as i pooped once  like it was still hooked up, then 4 months later i felt the urge again and pooped again.. She said it was normal..

Reply by Shadow912, on Fri Aug 17, 2018 9:28 am

Hi, ive had an ileostomy now since April, i never passed mucous or anything untill about 2 months after... then nothing again...however,  this morning i passed wind from my bottom a couple of times... ive read that this cant happen... but obviously it does.. is this normal? Has anyone else had this happen? 

Reply by sassie, on Tue Sep 04, 2018 11:16 pm
Jabid wrote:
Hi Friends,

First of all, I would like to say I am so glad that I found this site as it has answered some of my great concerns, particularly in regards to release of mucus. I had a permanent colostomy done on the 3rd of July, 2012. I am 25 years old, from a tiny island Republic of Fiji, where we certainly lag behind in medical infrastructure. My case is rare, if not, almost unknown here. I had to have my surgery done in India where I spent 6 months of long, gruesome and intensive treatment. After the surgery, I went through intensive chemoradiation, which was the hardest and most difficult part of the entire treatment.

Nonetheless, I somehow managed to pull through and now life is carrying on, but not like as what it used to be. I find it so difficult to sustain myself especially with the increasing cost of sourcing the ostomy materials from overseas as we do not have them here. I have tried several brands and found out that Covatec's 2 piece system works the best for me. I also do irrigation and it helps a lot, especially, when I am at the office.

One of the other and the major problem which I face is skin irritation around the stoma. It becomes so hard at times that it gets almost impossible for the wafer to stick on the skin and I have to heavily plaster it with adhesive bandages. I would very highly appreciate any suggestion/solutions for it.

I thank you all for taking out your valuable time in reading my post.

I hope to hear from you good people.

Take care and keep up with your health.

Regards
Jabid

PS: Please do not mind my English. English is a second language for me. Smile

Geritrex Compound Benzoin Tinture will help heal the skin and also help the wafer stick to your skin, I was awful broken out and skin was so tender i could not stand a wafter on sometimes over 3 mins. As soon as i started using the above i   wore a wafer 2.5 days. now i'm fully healed and could get 9 days if i had to.. Once i ran short and after a bath my wafer came mainly off, i reglued it with the above product,  Good Luck,

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