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The Diet Problem

Posted by Rhian, on Tue Dec 03, 2013 2:11 pm
Hi all,
I have an Ileostomy through Crohn's; which was originally a Colostomy, until it went wrong again - I've been an ostomate for five years anyway, and I still cannot digest vegetables except mashed potato (I can't even digest hash browns), and all fruit just goes through me, as well as all dairy except small amounts of block cheddar cheese. I am in remission, but this still goes on day after day, does anyone else have this problem? and if so what do you do please. I cannot take vitamin or Calcium pills, or have Iron supplements, as they cause me to have Epileptic fits, so I am stuck. Also is it normal to pass out white/cream stools when nothing different has changed in the diet? My normal is varying shades of green liquid/water/froth! thanks x
Reply by lorraine-cooper1960, on Sat Dec 07, 2013 4:34 am
Hi, oh my you have been through the wars. I still cannot eat with my ileostomy so I stick to blended home made soups (most restaurants will be very happy to warm it and serve it if you are out to dine and if you explain you have food intolerances so that you can enjoy a meal at the same time as your family/friends). I also live on clear apple juice, tea and water.
Custards jelly, you get the picture without me expanding more.
Your output sounds ok to me as it will change in texture and colour depending on your intake.
I'm sorry to say my Ostomy nurse say I may never get back to a normal diet (except I can tolerate grilled white fish, loose mixture of mash potato and also mashed carrot with salt flakes and butter now I'm hungry!)
I wish you good health and some relief from your problem. Lorraine.
PS I don't like to eat anything after approx 4pm although there are always occasions that crop up.
God Bless.
Reply by Past Member, on Sun Dec 15, 2013 3:10 pm
Boy I think with the output you are describing would mean you NEED TO SEE a colo-rectal doctor or at the very least a gastro...AS THIS IS   N O T  normal.  I had 3 things removed when I had severe chrohn's disease with colitis or die as the severe diarrhea about did me in and lost a lot of weight.  Fast forward today.  I am feeling good and doing well but have to be careful and eat just a little bit of something sweet (small piece of pie or candy) and no way would I do apple juice as that usually goes through people so that is something I would never consider and fiber in very small amounts.  You should go to the chron's/colitis sight and read what people seem to do well with.  I cannot eat any big meals or I have LEAKS BIG TIME and I can honestly feel if I start to overeat so that is good.  To even think you can go back to a diet like before is silly, but I think you should and could talk to a doctor about your issues and if you can, get literature which I am sure you can get from the hospital on ostomies...I was given a huge pack of information and a big booklet so that helped too, but A GOOD DOCTOR WHO KNOWS OSTOMIES IS A MUST ALSO!
Reply by jazzygirl52, on Sun Dec 15, 2013 4:34 pm
I had a total colectomy due to colon cancer

They said eat whatever I wanted but I have found I can't eat salads, red meat, fruit, veggies, and do best with white meat or fish and potatoes or rice or pasta-- I am also gluten sensitive as wheat is hard to digest

My surgeon told me to take Imodium 2x day and cite axel 2x day to normalize my poops but that would not probably be for you

I would avoid milk products. Fruit and fruit juices, and tomato soup or sauce -- from my experience
Reply by ostomyvisitor, on Sun Dec 15, 2013 9:59 pm
With Regard to your eating problems. Every Ostomy is not the same. Therefore there is no "One size fits all" answer to your particular problem.  I suggest you see a colo-rectal specialist or at the very least a WOCN (Ostomy Nurse).

I'm leaving a URL to the United Ostomy Associations of America

You can check out information on their site about Illeostomies.

The site above will give you just about everything you need to know about your situation.

Good Luck !

Lawrence (Larry) Pilarski
    The Ostomy Visitor

Bayonne Ostomy Alliance
                                          "Lighting a Candle Amidst the Darkness"
                                          Meeting 2nd Wed. Every Month
                                          2 PM @ Bayonne Medical Cntr.
                                          Phone: 201-339-5251
Reply by bjbd456, on Sat Jul 25, 2015 7:03 pm

I was diagnosed with UC at the tender age of 11, my father was retired military so my parents took me to the Navy Hospital where I was diagnosed after an awful procto exam on this god awful table that moved so my butt was in the air. I endured this awful exam every 2 weeks for aprox 2 years where I never saw the same Dr. more than 2 times and always had these young coremen in the room, and to make matters worse my mother wasn't allowed in the room. I got progressively worse, I started 9th grade @ 115lbs and 5'6"  I was down to 90lbs. by Thanksgiving,, I remember the day of my last appt at the Navy I locked my self into the bathroom and told my Mom if she didn't find me a real Dr. I would just go ahead and die before I'd ever go back to the Base for treatment.. I survived after finding the right Dr. he got my UC undercontrol and kept me going thru some pretty bad flare ups.. all this time I was used to eating just about anything I wanted. I was told to stick to a low residue diet which was no problem,, Fast Foward 15 years I had gotten married had 3 beautiful kids, then a year after #3 was born I had the mother of all flare ups and had to have my entire colon removed, well it took some adjustment, husband accepted it  I freaked out for a while, here I was 30 years old use to have the most beautiful flat stomach no strech marks looked awsome in a bikini and now I had a huge scar and a illeostomy..  It was mentioned to be careful what I ate stay on a low residue diet. but damn I started gaining weight,  my normal weight was 125lbs even after kids now it seemed every year till around 40, it started creeping up to 175..  arrgghh My husband became distant and we divorced afte 20yrs.  to make a long story short (too  late, I know) be careful what you eat. I  have been hospitalized at least 1 a year for small bowel obst.from eating either the wrong food or eating too fast. I did manage a 10 year strech from 92' to 02' but it still happens, Nov 14 was last time..  I'm excercizing more now,  a lot of early morning walks but I still can't seem to get below 175..  Best of luck to you,  adjustments like this take time but eventually you'll find the right routine for you. And the right food....

Reply by jazzygirl52, on Sun Oct 04, 2015 12:30 am

Actually an update to my earlier post.  I am not an ostomie person yet, but I did have colon cancer and my entire large intestine was removed in a sub-total colestomy.  So that is where a lot of food and liquid breaks down and is absorbed into the system.  As a result, without treating it, I would have the runs constantly and gas.   My surgeon recommended Citracel powder 2x a day after meals and immodium anti diahreal two times a day to keep things more solid. That helped a lot, but I was still very limited to foods and veggies etc.


In December I started Humira and I can tolerate much more and different foods.  While I find eating gluten free helps my overall gas and digestion, it's a 90% observance.  I now can tolerate a little fresh fruit (cantalope, small well chewed bites of apple, etc) and wider variety of glutenfree frozen meals like chicken lasagna , burritos, raisin toast with almond butter, and sometimes regular people food like a sandwich or chicken breastor chinese.  (Have not tried sashimi yet for obvious reasons).  Also beer and carbonated beverages don't sit well with me personally. I rarely have ice cream (lactose intolerance) but I still eat a bit of cheese and tofu cream cheese and sour cream.

So I still have issues but not anywhere as bad.  Humira really helped me. I do not know if it's recommended for ostomies, but just sharing.

Reply by RansiPlick, on Fri Oct 09, 2015 5:26 am

A person who has recently gone through colostomy should avoid eating too much fibre in food. Drinking lots of fluids, chewing the food properly, and having the meals regulary are some more tips which are given to ostomates these days by health professionals.

Reply by Sharoun, on Wed Apr 19, 2017 5:12 pm

Anyone want to try it with me? I've read a lot about it and from what I found out it's quite good.I'm starting a course this week, we'll see how it goes.

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