I do I cope with this my bladder problems have been going on for over 8 years. Been using a catheter for 8 years. Two years with a normal catheter, and 6 years with a SPC. I have no bladder control, no urge to pee. I leak urine from the urethra constantly, and have to wear large pads. I have really painful catheter changes; it bleeds, I have had 5 UTIs this year so far. Three site infections in the past two months. I am in pain 24/7.
I am in line for a urostomy operation when they have completed all the tests. How do I cope with all of this until the operation? I am 55 in two weeks, but feel like an old lady of 90. I can't go anywhere because of leaking, pain, etc. I want my life back, and have a quality of life. All I want to do is sit in a corner and cry. Life feels like a living hell. How do I cope with all this, and the longer it goes on the more upset, low, isolated, frustrated I feel.