Anyone here have an Illeal conduit? Colostomy?
The love of my life broke his neck in 1992. So, 22yrs+ post injury. C5/6 incomplete. He used a condom catheter until 2006. Indwelling catheter placed during emergency surgery to remove kidney stone stuck in right ureter where it connected to bladder in 2006. Woke up from that surgery with incredible burning pain in his bladder that has never subsided. In 2008 he got a suprapubic catheter. Again the burning pain, pressure, and reflux to his kidneys has never subsided. Since getting the suprapubic he has been treated with IV antibiotics twice for Pseudomonas. Easly we want to reduce or eliminate the infections to extend the quantity of his life. However, the pain is robbing him of the quality of life. If anyone has an illegal conduit, we would love to hear any and all details, the good, the bad, the ugly. We know that if we do this there's no going back. Try Botox injections to his bladder walls once and it didn't really help but for about a week and even then it only took the pain down from a constant eight to about a seven. Since his last trip to the hospital for treatment of Pseudomonas the pain is still higher than ever and constantly 10 out of 10.
The doctors are suggesting an Illeal conduit. He already has a colostomy and has since 2009. The colostomy has been great.