Hi. Looking to talk to someone who had illeostomy due to ulcerative colitis. I just had scope due to bleeding. They found an ulcer. Could my disease be coming back? Can my disease come back? Any advise would be appreciated.
Well ,, that’s a tricky one to tell. I had an ileo because of UC (pan colitis) and there could be multiple scenarios from what u telling
U either had that ulcer before the surgery and it did only inflame after treatments had been withdrawn or stopped abruptly , or U either have something called diversion proctitis which basically a reoccurring of UC in the rectum stump even without having any waste that runs through what’s left of the colon. last possibility is that they could not take control over UC with the subtotal coloctomy surgery.
I had an oscopy 6 months ago , that was 5 months after I had the surgery, what they left of the colon was all inflamed and full of ulcers. U can be prescribed steroid enemas, or u can leave it to heal by itself if not causing much bleeding, discomfort or any excessive discharge.
If you taking the steroid route, dont panic. They dont get absorbed by the body in this formula; so u wont have those horrible sife effects as in oral steroids and prednisolone.
for myself it didn’t heal completely but i didn’t take anything for it either, as it was only bleeding for a week and then went to normal again. Currently in remission with rare episodes of bleeding.
Hope that helps
Thanks for the advise Darious