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Just Tired Of The Crap

Posted by hawk, on Wed Mar 11, 2015 11:38 pm

Back last August my intestine ruptured due divaticulits, I went in to septic shock and a coma for eight days. When I awoke I told the nurse that I had to go to the bathroom, she said just go, I said get me a bed pan, she told me that I had a bag on my side. I realized that there was a ileostomy bag on my side. Well to make a long story short, I have adjusted to the bag but there is one problem, I had radical surgery that took out an eleven by eleven section of my abdomen using and skin grafs from my legs to  cover it  resulting in the bag being placed on my right side. It is hard to change the adapter and snapping the bag on, plus getting out of bed without stomach muscels is trying.  I love humor, W.C Fields, Monty Python ect.. But it hurts to laugh or sneeze, Bla Bla Bla. I went back to the hospital to get an evaluation on reversal. One of the staff members told me due to this giant hernia they call it It would require a mesh and more skin grafs, I said I will lay back on this examination table and you can start now. I asked the surgeon why did I have such a radical surgery, he said it is not the technique that is used now, the surgeon that did the procedure has since retired so I guess I was operated by a dinosaur. Well I have another so called consoltation on April fith wishme luck. Thanks, Hawk

Reply by Heidi92, on Fri Mar 13, 2015 12:14 am

Good luck!  I hope things get better soon.  Keep your head up!

 

Past Member
Reply by Past Member, on Sun Mar 15, 2015 4:33 pm

yes good luck

your story is very similar to mine/diverticulis infection took me down-high fever unconcious-shock/emergercy surgery/ bag on my left side/ right side a hole as large as the grand canyon

1 year ago/ now stoma prolapsed with hernia

they tell me hold off for reversal

can they reverse yours=if so do it now

geeeez

susan

Reply by iMacG5, on Mon Mar 16, 2015 5:21 pm

Hey Hawk, sorry about the crap you’re going through and I have no advice for you except, like we discussed before, it is what it is and we need to address it and do whatever we can to make it better.  If you don’t have a consult until April 5th, it doesn’t seem like the surgeon is too concerned.  What to do in the meantime?  I don’t know that answer but I’ll hope and pray that things get much better quickly.

Sincerely,

Mike

Reply by Mrs.A, on Wed Mar 18, 2015 1:47 pm

Hi Hawk,

Wow you sure have been down a difficult road. I hope your consultation goes well and you end up with the best results possible. Please keep us posted.

Reply by Mary Ann, on Wed Mar 18, 2015 2:39 pm

Similar situation, diverticulitis with abscess and stricture. Urgent but not emergent surgery, I was leaking but not ruptured

Before doing a reversal make SURE they have done the tests to ensure that it will work, flex sig, gastrogaffin enema. They did not do this before my first reversal attempt. Also a colorectal surgeon is a step up. After my original surgery the general surgeon tried to do a reversal 4 months later, but found more strictures, had to change my colostomy to an ileostomy which is a lot harder to deal with.  Went to a colorectal surgeon, she had to do an interim surgery to rearrange stuff so the reversal would work. She also did all the right tests.  So my real reversal a year later than the first attempt was only 5 hours, much shorter than any other, hospitalization was only 7 days, 4 months later everthing is hooked up fine, just gave all of my ostomy supplies to the local ostomy society since the colonoscopy last week showed everything is looking great, I am feeling better than I have in 5 years.

Just make sure you have a specialist who will do the right tests before they open you up.

 

 

Reply by Mrs.A, on Wed Mar 18, 2015 2:49 pm

Hi Mary Ann,

Great post, I am glad that you are feeling better than you have in five years! Also glad your posting about it!

Reply by hawk, on Wed Mar 18, 2015 8:26 pm

Thanks for the input my friends.   Hawk

Reply by Rosiesmom, on Fri May 15, 2015 10:48 am
hawk wrote:

Back last August my intestine ruptured due divaticulits, I went in to septic shock and a coma for eight days. When I awoke I told the nurse that I had to go to the bathroom, she said just go, I said get me a bed pan, she told me that I had a bag on my side. I realized that there was a ileostomy bag on my side. Well to make a long story short, I have adjusted to the bag but there is one problem, I had radical surgery that took out an eleven by eleven section of my abdomen using and skin grafs from my legs to  cover it  resulting in the bag being placed on my right side. It is hard to change the adapter and snapping the bag on, plus getting out of bed without stomach muscels is trying.  I love humor, W.C Fields, Monty Python ect.. But it hurts to laugh or sneeze, Bla Bla Bla. I went back to the hospital to get an evaluation on reversal. One of the staff members told me due to this giant hernia they call it It would require a mesh and more skin grafs, I said I will lay back on this examination table and you can start now. I asked the surgeon why did I have such a radical surgery, he said it is not the technique that is used now, the surgeon that did the procedure has since retired so I guess I was operated by a dinosaur. Well I have another so called consoltation on April fith wishme luck. Thanks, Hawk

Hi Hawk, so sorry you are having such a bad time of it, i agree with Maryann you really need a good colorectal surgeon. My surgery was done orthoscopaclly(not sure of spelling) and robotacly. Could you be a candidate? It sure makes for a much easier recovery.
Thinking of you,

rosiesmom

t

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