Struggling with feeling unattractive - seeking advice on boosting self-esteem

I have tried to write a long explanation about this but it keeps erasing it and this is hour 3 I have worked in trying to tell everyone about this. :-). I am a Crohn's patient and I have had an ileostomy, j-pouch, ileostomy and I found the best thing ever, the BCIR procedure. I had mine done in July 2014 and it was the best thing I ever did. I can do anything physically I want. I can wear anything I want including bikinis. Nothing is external, everything is internal. I only must cath about 3-4 times daily, that is it. Nothing more required. The only thing you can see is a very small round hole and I put a little dot band-aid over mine. It is called the BCIR procedure, done by Dr. Rehnke at the Palms of Pasadena Hospital in Saint Petersburg, Florida. Susan Kay is fabulous and she will help navigate you through everything. If you would like info from someone who has actually done it, me or to learn about my experiences with it feel free to email me at

Auto correct on my last post.. Ugh! ;lol..

Good reply, PB. You always look very well put together in your photos. Loretta

Hi all, I read your post GJ earlier in the day, and had to think about how to respond to this.

I've had my ileostomy for 50 plus years (from when I was 15), but it's never been the ostomy itself that made me uncomfortable about my appearance. I was in a bathing suit (at age 16) the first summer after my surgery.

My loss of positive body image happened from all the effects the steroids had on my body. First, I lost a lot of weight and was wasting away (79) pounds. Then came years of treatments with steroids.... I grew hair down the sides of my face while losing the hair on my head (14 wasn't a good year for this teen). Then they switched meds, and I blew up with about 50 pounds of fluids. My skin turned a lovely shade of "red," like perpetual sunburn, while I began to get stretch marks (purple) on my legs. I looked like a red zebra with purple stripes. Insensitive people would ask, "What happened to you?" and I'd tell them that my mother beats me. Today, that would get her put in jail.

Finally, when I developed osteoporosis and degenerative disc disease, the doctors had to stop the meds... and I began to bleed... actually hemorrhage. So in Sept of 1963, I had an emergency ileostomy... went into shock on the table... and developed pneumonia. I gather my life was touch and go for a time, and when I woke up, about two weeks later, and looked in the mirror, I screamed. I'd lost about 40 pounds (of fluids) and didn't recognize myself. I know my body went through changes, but I couldn't see them since I couldn't stand up without the back brace on... for almost a year.

August of 1966, I was "recovered," was out of the back brace, was finally going back to school, but had to deal with the reality of what my "stretched out body looked like. I have stretch marks from my ankles... up my legs, all over my belly (along with the major scars and pulled-together skin from the site of 2 hernia repairs). I no longer had a waist... and had so much flabby skin (from the brace) on my lower back that I was unable to get into a pair of pants.

I was so glad to resume my normal life that I didn't give any of it much thought... until I tried to get my stretched out "boobs" into a bra that fit me. I was a 16-year-old teen with breasts like an 80-year-old woman "literally" udders... that were empty. Finding a bathing suit that "fit" was more about finding one with enough support that would also hold in the stretched out underarm skin. Ladies... you'll relate to this... A woman in a "foundation" store asked me if I'd recently had a baby. When I said no... she said she had never seen breasts like mine on a teenager. Needless to say, I ran out of the store...

So, through the years, did I sometimes feel unattractive? Obviously, yes. Was I upset, sad, angry, depressed? Yes... to all of those. But even as a teen, I realized that the ostomy saved my life. I did harbor some anger towards my parents for choosing medical intervention that destroyed my body rather than have me go through the surgery. But eventually, I got over that... especially when my oldest son developed Ulcerative colitis and went on the same roller coaster ride of medical intervention (stretch marks and all). Parents do the best they can... and my "job" was to live my life as fully as possible... because I was a walking talking miracle, and my two sons, born out of my disfigured body, were truly a blessing.

I learned to "do the best I could with what I have. I never had the body for a bikini, but I do need to find a one-piece that has enough tummy support to hold the ostomy pouch flat. People, you have no idea how "small" these appliances are these days, compared to the ones I had to wear way back when. Today... finding a suit with the bra support is still more difficult than finding one to support my flabby belly and pouch.

For you men with stomas placed near or above the waist... I really sympathize with you. My ex-husband also had an ileostomy (that's how we met) and he was even more self-conscious than I was. But back in the day... men's bathing suits were more than heavy stretch fabric types, with wide waistbands. He had a half a dozen of those that lasted him about 20 years. I don't think they even make them anymore, and since we've been divorced 20 years, I don't know what he wore instead. Frankly, I like those much more since you could see more of the guy's "butt" and even the "package" up front. The big baggy suits that have been in fashion for the last 20 years... don't really do much for the male body. (Not everyone can or wants to wear a speedo). Love the suspender suit that someone posted. Just as the bra bathing suit industry has adapted and now services women with mastectomies, I think we need to make manufacturers aware of the needs of "ostomates." There are more and more of them around the world...

I don't know how to help others have a better body image... but I do know that "clothing" covers up a lot. Even though I'm quite overweight, I get a lot of compliments on the way I look and the way I dress (for my size and shape). I've learned to live with my imperfections... and now at 67 (and dating) I'm probably less self-conscious than I was in my younger days... I hope this helps some of you...

Best regards...

Marsha

Thanks for your response, Marsha! It sounds like you had a real rollercoaster of a ride, that many of us can relate to!

It's great to hear that you are dating again, and how comfortable you are with your body! I must be a little bipolar, because I go from feeling very ugly naked, to "If you can't look at me naked and keep your lunch down, that's YOUR problem!"

One thing that works well for me to hide my above-the-waistline equipment is a very tight-fitting sleeveless undershirt! Those that have seen me naked, with the bag in full view, don't seem to comment much on the bag... My guess is they're focused on something else?

As for bathing suits and swimming, a good surf shirt keeps everything tucked in tight when worn with good swim shorts... Nobody even notices the bag anymore... But on a really hot day, sometimes you just want to wear a tiny little speedo banana-hammock! Lol.

Hello, Bellabutterfly, got my BCIR in July 1994. It was the best thing that ever happened to me. I had a Brooke ileostomy for 9 years prior to BCIR. Allergy to adhesives was a great problem. My skin was always weepy and I could not keep the wafer secure. I use a small patch from Austin Medical Products and a skin barrier, and now I have no problems at all. Like you, life began again! I can exercise and do anything else I want to. Yes, I can wear anything. I love clothes!

Hi

Understatement, my husband has been near me in 12 years, so yes, not only unattractive but self-esteem at an all-time low.

I have a great job, excellent salary, and have even started to go to the gym 4 times a week. In all honesty, I feel that if he has looked at me in any way, shape, or form in 12 years, no matter what I do, he isn't going to start now. If I had the strength to leave, I would.

That is awful to hear, Debs96! I'm sure the problem lies with him... as most often it is the guys that don't feel like being intimate anymore... (even though I don't understand why.)

I will admit, I did go through a period where intimacy lost its spark for me... but with a little coaxing from my wife it came back big-time! I hope things can turn around for you, because I'm sure you're not unattractive! Perhaps you just need someone to make you smile again, and perk up his interest...)

Hi

Very interesting to see the different comments, I feel it is all in our heads........I am now 2 years with a permanent stoma and I do not feel any different, my partner and I have a lot of laughs and enjoy our time together...there are times that I even forget my situation and then my stoma will remind me.........Live life to the fullest and enjoy being alive.

I was thinking that something like this, crotchless, might be good in bed, but then I settled for just an elasticated support belt.

Hi, read your post today. Had ileostomy for 9 years before getting the BCIR 21 years ago. Still like to share my experience with anyone who is considering a BCIR. Total freedom, can exercise, wear nice clothes, etc. So much more convenient to cath than to empty external pouch. No problem using public restroom. Was also the best thing that happened to me. Was 53 years old when had this surgery at Lutheran Medical Center in St. Louis, MO.

ASOS.COM. Several patterns to choose from.

I saw a young lady wearing one in Mexico and that's where she got it. Cute little 50s styles like that are perfect for us.

Have just seen the comment from Debs69.

No one should have to put up with such lack of attention in a relationship.

I am sure you could meet someone more appreciative in your gym, or anywhere for that matter.

I used to feel the same way, until my wife decided she wanted a divorce, (without mentioning she had started a relationship with her boss).

Speed-dating was the best thing I could ever have done. I met many lovely women, who were all much more appreciative than my ex-wife ever was. And not a single rejection!

Admittedly I did the opposite of most, hiding my bag under a belt and tee shirt hoping they wouldn't notice. It worked! At least they never asked about it until we had had several nights together, when I didn't need to explain that it needn't be a problem, as they already knew.

I was very nervous at first, but the more success I had with new relationships, the more my confidence improved. Now I can't believe I once thought my sex life was well and truly over when I got divorced - it had just started!

So Debs, my advice is to go for it. Leave your unappreciative husband and find someone else. It will be easier than you think, believe me! You have nothing to fear but fear itself. To repeat an old US president (unless that was just in Annie).

Mmmmm it all sounds so easy!!

I can't hurt my daughter, who is actually 19 or my elderly father.

I would feel selfish leaving for the sake of intimacy, sex. It's been 15 years, what a few more? Ok I'm 45 maybe a canny few more!! I have a hand

I think we can all relate to this, as I've had similar feelings regarding wearing bikinis etc.

I just wrote a post about feelings of depression when it comes to the bag and being intimate with others, you can read it on my blog.

I hope your feelings are alleviated soon, as no one deserves to feel badly about their bodies.

When I first visited this site in early 2011, I was curious how people were adjusting to the challenges of the ostomy. At the time, I was in my mid 60's and felt that the best years of my life were enjoyed and that any extra good years were all gravy. Sure, there were a few bumps left on the road. I remember while driving to teach a class one afternoon I found a nasty surprise under my belt. I had to deal with the situation and take steps to avoid it in the future. I eventually found a lot of great practical ideas here; but, more importantly, I found a spirit especially in young people that rejects despair. Over time I have come to appreciate that the cards I have been dealt are as valuable as my mind chooses, no more or no less.

PB

These are valuable words of wisdom, PB. Thank you for sharing them as always. Take care and enjoy your weekend. LadyHope

I just finished a post on the subject......