Embracing the Present: Finding Gratitude in Pain-Free Moments

You're welcome LH. Glad I could spot the typo. Apparently, perfuse means "permeate or suffuse (something) with a liquid, color, quality, etc." Who knew?

Re: the conference, I've already seen so many GI docs WOCNs. It just doesn't seem likely the ones in St. Louis will have any new options. It'll be, yup, you're putting the bag on right, you should smell fine. Have you been tested for C-diff? Etc. But I hope you guys have a good time, and you get a break from work. Let us know how it goes. Take care, JP.

Hi Jpeters, thanks for the post. Hope you had a good week. I am sorry that you will not be able to make the UOAA conference. I completely understand regarding the anticipated comments from the GI/WOCN specialists. I feel the same way about some doctors. I have been seeing a few lately and I seem to be constantly repeating myself to everyone, not once, but over and over again. Doesn't anyone take notes anymore? It is frustrating to say the least. I just can't believe that the conference is less than two weeks away.

I had a thought Jpeters regarding the odor situation. I notice the wafer, after a few days attached to my skin, creates an odor no matter what I do. I use M-9, Na'scent or Safe and Simple to lessen the smell in the pouch but the smell is definitely coming from the wafer as it is breaking down and doing its job. The smell reminds me of the ostomy powder that I use. Do you think that could be happening with you? Maybe the wafer is causing some odor as it is breaking down?

Anyway, I have a busy Saturday. My niece is having her baby shower and she is expecting twins. I am so happy for her and her husband and blessed to be able to attend. Take care and have a nice weekend. LH

You can forget that you have a pouch. Wow! Even when I'm asleep, I am aware of it. Good for you!

Hi LH, thanks for your feedback regarding the old wafers causing odors. I only go out in public after eating nothing that day, irrigating twice, showering and changing the wafer/bag. So old wafers aren't an issue here. But they probably would make the problem worse. Congrats to your niece and nephew on their twins. They'll certainly have their hands full in the near future. Hope you enjoy the conference.

About to undergo an ileostomy. Any help?