I also want to say before i do this, that I have read so many of y'all's stories and I sometimes feel like I really have nothing to complain about. I never had cancer or had a dibilitaing disease since childhood.
For all of you that have had to deal with those things, I commend you. I actually commend ALL OF YOU for your courage, strength and honesty to get onto a public forum and tell your history and answer questions.
I can see why you do that;the people here I have talked to or even read things about, are the most compasstionate and welcoming people I have ever had the honor of "meeting".
That being said, this is how I happened to become an ostomate on 24 oct 2009. ( this is very difficult for me to tell all of this for some reason,makes me cry as I type) lol
I went in to have a routine hysterectomy on 20 Oct 09. No cancer, no fibroids, just pain during intercourse and jacked up periods. I am 39 and have 3 awesome kids, 23, 19 and 17..I'd say I'm done having babies so I decided to have this done and was very confident all would be well.
Surgery went great, I was using my Morphine pump for pain but by that night, I had them unhook it. I always felt bad on Morphine for some reason.
Next morning, I was up walking, wearing my own kick-a** Victoria's Secret Pajama pants and tee and walking the halls with my boyfriend. That evening, around 4:00 I felt a burning pain in my right side next to my belly button and didn't feel right and noticed my abdomen was hurting worse than it did that morning. I mentioned it to my BF and the nurses. I figured I just overdid it, I'm known to do that.
By the next morning at around 530, I went to swing my legs out of the bed and that's as far as I got. The pain was horrendous...no words can describe what I felt. I could not move, I couldn't get my legs back on the bed and I couldn't pull my upper body up. I laid there for about 20 minutes until a woman walked by and said, "Honey, are you ok?". I couldn't reach my call button , so I was stuck.
My fever at this point was 101...pain was worse and BF and my best friend were there asking the nurses to call the doctor. He finally came 6 hours later, told me I had gas and to get up and walk. By now, that evening, fever was 104...pain was evil..I could not move. I am a pretty brave chick, I have ridden horses my whole life. Been injured many times, had my back broken in a horse injury. I have a very high pain tolerance and this was in no way tolerable.
Long story short....the doc tried to suggest many things, gas, kidney stones??, bladder infection???, kidney stones??, more gas....kidney infection, bladder infection...I finally through all this asked if it could be my appendix?? He said, "Well that would be the worst luck, if your appendix burst! But no, i don't think so. ( he did indeed end up removing my appendix due to the horrible condition of it from raging infection)
I was in and out of conciousness due to pain, illness and pain meds. My BF and best friend finally, seeing me deteriorate, started throwing a fit .
Two of the nurses came to my BF and told him to get me out of there ASAP. One of them even went to the doctor and told him, something was bad wrong and should take me back in surgery and look. He told her no, He wanted to wait.
Four days later, 24 Oct, that night at 600 pm I was finally taken back in after Ct scans, Kidney Scans,( what's the kidney obsession??) etc.... at one point, I begged the doctor to help me and told him I was dying and why was he letting me die?
7 hours later, I was put in ICU and I had no idea what was going on, a day later, one of the ICU nurses leaned over me and asked "How does your bag feel, hun?".....bag??? what the hell is she talking about, a bag? I went back out of conciousness and 3 days later, I found out when I was in a regular room, what BAG she was referring to.
My BF actually told the surgeon that he wanted him, and both the OBGYN and the general surgeon to be there when I woke up to talk to me about what had happened. They couldnt be found and didnt answer their pages.
I had spoken to the surgeon who did my ostomy and his exact words were, "When I opened you up, and I'm sorry to be so crude, but your entire abdomen was full of pus and shit. It was like a RIVER of shit." He spent 7 hours cleaning me out and repairing my colon thnat the OBGYN tore into. The OBGYN did however tell my boyfriend immidiately after the 2nd surgery that if I ever wanted a tummy tuck, we could get one, sense the doc that did my ostomy does tummy tucks!! AWESOME!! he also kept telling me that when I finally did talk to him. WTF??
I had sepsis and a horrible, raging infection. I was there in that facility for 9 days until I was stable enough to be transferred by ambulance, at MY Boyfriend & mine insistance and the ostomy surgeon's recomedation as well.
I got to the other hospital and boy what a difference!!! I was malnourished ,because for 9 days, I had 3 chicken nuggets, the day after the hysterectomy. After that, no food and they didn't have me on any type of IV nutrients, just the regular IV fluid. The docs at the 2nd hospital were actually shocked and disgusted at my treatment.
the second I got into the new hospital room, I was on several meds, stronger antibiotics and a food bag. I had a psychiatrist, a WOC Nurse, a vascular surgeon, who I LOVE, ((he wears bow ties!!)) a internal medicine doc and 4 docs from infectious diseases. Way different than the last place when they handed my boyfriend a DVD about ostomy care in the hall and told him that we needed to watch it as soon as I can. Pathetic.
i was in for a total of 3 weeks the 1st time. I had ureter tubes put in and didnt know it ( we were never told they were put in, the only way we knew id when I called the ostomy surgeon to see why i was bleeding so profusley every time i peed) so 2 weeks after my release, I was back in for 4 days having another operation to have them and the infection they left behind taken out......never even signed a release for the tubes to be put in...
I know its a long story and Im sorry for that but its MY story and it felt good getting the whole thing out and down on "paper" so to speak.
I had a total of 4 operations in 3 weeks and still havent gone back to work. I plan on going back within a couple weeks if i can.
The bag situation is tolerable, when you think about the alternatives...death, well, it is a great thing in my opinion. When I look at my bag, who I named after my ex, I am grateful to be here and have opportunity to change it, and deal with the hassel.
Do NOT get me wrong, this trauma I have been through is horrible and I am dealing with everything one day at a time. I cry a lot and I pray even more.
It has been horrible for me. I have a great guy who has stood behind me and never faltered, so that is a great help. I have good days and bad days. Today was a good day, tomorrow, who knows? At least I'm here to see it.
I know we are all different and we all have different experiences and we all have differnt reasons for our ostomies, some of us are temporary and some are permanant; but we all have one thing in common, we are all ostomates and we are all still here because of these smelly, yucky, noisy, creepy little sacks of misery. ....and I love mine.
Thank you for reading this and unerstanding my need to get this out.
love to all......Hannah