Just left my surgeon's office. He said my emergency colostomy was due to diverticulitis, not Ulcerative Colitis or Cancer, and it should be safe to reconnect me. I have already had an EKG by my primary care physician and it was clear. However, Dr. Carter still wants a release from my cardiologist. I have an appointment to have a colonoscopy through my stoma. When the release from the gastroenterologist and the cardiologist get to Dr. Carter, we will do the reconnect through the old incision. I do not have a hernia now and he warned me against exercise other than walking for the next year. Of course, it is hard to walk with no cartilage in my left knee or left ankle, but I will do the best I can. Prayers are requested, please.
Hello definitely praying with you for everything to go well.
Thanks for keeping us informed. It all sounds good to go and I wish you luck in your journey ahead.
Drfields24, I was going to send you a comment. Thank you for replying to mine, this makes it easier to communicate. I read your profile and understand your reaction. I had a ruptured colon and went into septic shock before my colon was removed and a colostomy created. It was a shock to wake up with a bag on my belly. It took about 4 months to accept it and another 2 months to get used to it and my body's new demands. Now, I could keep it if I had to but would like to get rid of it if I can. People on this forum will answer questions for you and give you support. I am extremely grateful to everyone who helped me along the way. If I can be reconnected, I will still stay in touch to return the favor.
Bill, thanks for your comment.
Sounds like your on your way. I'm glad for you and will keep you in my prayers. Let us know what the Dr. says it's time to reconnect!
Well, my gastroenterologist would not proceed without a release from my cardiologist. He would not give a release without doing an EKG in his own office. When that was done, he said his result was different from the one I had in his office a year ago. We talked about his EKG and the one my PCP had done. The cardiologist had more data collection points and therefore revealed more about my heart. I knew I had a heart attack in 1997, but his EKG looks like I had another one last year, probably during my emergency colostomy since the surgeon had commented on nearly losing me during the surgery and twice more while in ICU. Now I have to do a nuclear stress test to see how much damage was done to my heart and whether or not I can have any more surgeries. The stress test will be in two weeks. While dealing with that, my PCP called to tell me it looks like my thyroid is beginning to fail. I have to go back in for another blood workup. I told him, I'm not a horse, don't shoot me. I'm really worth saving. He just laughed.
I just got a call from my cardiologist. He wanted me to do a nuclear stress test, since his EKG showed loss of function in the left ventricle, lower left part. That's new and cannot be explained by the heart attach I had in 1996. He said it looks like I might have had a heart attack during my emergency colostomy. I took the stress test last week and he got the results back today. He won't clear me for the reconnection surgery without an office consultation because the results were more abnormal than expected. In the past, 2 of 3 stress tests required follow-up cardio-catheterization to examine some damage. I have one cardiac artery 65% blocked, the valve between my right article and right ventricle is only 65% efficient, and there is significant damage to the rear wall of my right ventricle. I suspect there is new significant damage to my left ventricle where it feeds into my aorta and that's what my cardiologist wants to talk about. I suspect I am about to have another heart catheterization to find out how much damage there is and how much ability I have lost. My appointment to see him is not until August 10, so if I can still have the reconnection, it won't be done until September. Please continue to pray for me. This is discouraging and disturbing news and I need thoughts and prayers please.
Well, I have seen my cardiologist again. Yes, I did have my second heart while I was having the emergency colostomy last year. The major artery on the left outside of my left ventricle is about 70% blocked. As long as I am not doing anything strenuous everything is fine. As soon as I start doing anything strenuous, within a few seconds the blood flow to my brain diminishes severely and I fall down or pass out unless someone catches me. We are trying a new medicine. If it works, great. If not, there is a new form of therapy I can go through that basically refrains my entire cardiovascular system to maintain blood supply in my head instead of allow it to pool or rush to my feet when I stand up. In the meantime, I am not at risk if I am resting, so my cardiologist has cleared me for the colonoscopy and reconnection surgery. When I am healed from that, we will reevaluate the new medicine. If it is not working well enough, we will do the therapy, which requires one hour a day, five days a week, for seven weeks. It requires a major commitment and lots of money but I should be back to almost normal when everything has been done and healed. Pray for me and remember me in your meditations. Thanks, everyone.
Thanks for keeping us abreast of what is happening for you. It all sounds very stressful but hopefully it will work out okay in the end. My thoughts are with you now and particularly for some good news on August 10th.
Will definitely be praying.
Will surely keep you in prayer and you, please take it easy.
I have now had the colonoscopy. My gastroenterologist has cleared me for the reconnection surgery! I see my primary care physician today and my surgeon tomorrow. Hopefully we will set a date in the near future. I will post the results of the two visits on Wednesday.
Hello Don. Great news so far. I look mforward to hearing some more good news mid week.
Finally all the hoops have been jumped through and all the hurdles cleared. I do have additional damage to my heart, but the cardiologist is willing to wait until after the surgery before deciding whether additional therapy would help. For now, Ranexa is working. The surgeon has scheduled me for reconnection and repair of a small hernia on September 11th. Praise the Lord! I will stay in the group and share my experience with anyone who may find it helpful. Thanks to everyone for helping me to keep going. As I told my surgeon, I have adjusted well enough to stay the way I am but if I can get rid of the bag, I want to try.
That's great news Don,
We will be looking forward to hearing all about your recovery and life without a bag!