I never had phantom pains, but after I had my entire colon removed from having colon cancer, it really bothered me. And it might sound crazy, but I missed my colon for a long time and it really upset me. Even worried me that here I am now missing a 6 ft. long part of me that I have had all of my life. I was just wondering if anybody else ever felt that way. This is my 1st post. I had ulcerative colitis when I was 13 yrs old that turned into colon cancer when I was 29 yrs old. 99% of my colon was full of ulcers, so that's why they took out my entire large intestine and hooked up my small intestine with a J-Pouch. I did really well for quite a few years and then I started getting real bad abscesses with fistulas and had to have numerous surgeries. After every surgery I had, I started losing more and more muscle strength and it got so bad that I was going on myself in my sleep, so I made the hard decision to get a permanent ileostomy. It was the best decision I have ever made in my life, except for being saved and giving my heart to God. I hope and pray that you all stay positive and keep your heads up! We are all family here that has been given a 2nd chance at life, so live, laugh, and love. :)
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