Hello, my name is Peggy and I live in Colorado Springs. I had my colostomy done in April 2015. For the most part things are okay but I do end up in the hospital every couple of month and no one seems to have answers to important questions. So I thought I would ask it here because people all over the world deal with something different on a daily basis.
Okay surgery date April 2015, did relatively good for the first few months. I then moved from AZ back to CO. When I got to CO, I started having severe bladder spasms that felt like contractions. They decided to do a supra publc catheter, " that will fix the bladder spasms, you can go back to your normal life". Ummm yeah no, the bladder spasms got even worse. I was referred to a urologist in Aurora, CO. Who did all these excruciatingly painful test and determined that my bladder did not grow correctly bc of my disability. So the indwelling Cath were sitting on the nerves and I had a neurogenic bladder and the bladder needed to be removed and so it was.
In the midst of all this, the colostomy was still being weird. Every couple of months, I would go from completely fine to not. My nose would start to run but would still be stopped up. Then I would start feeling really nauseated and wouldnt be long before I was throwing up. When this happens my body responds and I start having some kind spasm that would pretty badly force, liquid and poo out my backside and I have no control over what or why this happens or what to do when it does????? It be great to hear what the issue might be. It also would be great to find a WCN as it gets really hard in life when you have no one to talk to and having no way to know what's going on?
Anyway I am sorry for the post being, so long I an just hoping that someone will read it all and respond. Unfortunately I cannot afford the membership fee. Every bit goes to rent.