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Anxiety and ileostomy

Posted by dadnabbit, on Wed Jan 03, 2018 12:07 pm

Having access to leagal marijuana is a great advantage, but not everyone has that freedom.  Using what is available is just a first step, not a lifestyle.



Reply by dadnabbit, on Wed Jan 03, 2018 12:09 pm

freedancer, he no longer is able to practice, but money and "sorry" really don't do much for faith and trust.


Reply by iMacG5, on Tue Jan 09, 2018 6:34 pm

Ya know Geo, some wise, caring folks offered their takes on a subject so close to them and most others of us ostomates.  It helps to know we're not alone.  It help's to know others have experienced similar medical horrors.  Their stories don't make us happy by any means but we might just feel less different.   As much as we know about the human body we may never be able to accurately determine the relationship between physical maladies and emotional difficulties.  Like Bill suggests, PTSD is common with war experiences that might have not been physical.  Some folks might have never suffered a day in their lives and can't function without medication for anxiety or depression.  Others might've been run over by an eighteen-wheeler and became standup comedians.  Then again there are standup comedians who took their own lives because of the emotional pain.  We're different from each other.  We feel things  differently.  Similarly, perhaps, but not identically.  Sharing with others like us here helps.  i hope I can be helpful sharing my experiences.  I don't take any of you folks for granted and, relative to your own discomforts, you're all experts.



Reply by MaggyMay, on Sat Feb 10, 2018 1:25 pm

Hi all,

Such an interesting post. I have a permanent ileostomy and I have had it for two years. I have had 6 major bowel ops in the past twelve months and I have TPN 4 nights a week at home and I have become the most anxious/obsessive person ever. It’s so sad as I feel robbed of the person I used to be. I work all week and function well however I am not entirely sure that this is not a permanent act. 

I am new to this site so I hope this posts.

Have a good weekend all!

Reply by iMacG5, on Sat Feb 10, 2018 5:01 pm

Welcome MaggyMay.  You've come to a good place.  Forgive me but I'm not sure what TPM is.  

I think none of us are who we used to be.  Physically, that is.  I think some of us are wiser, stronger and mentally and emotionally better than before.

Please stay in touch.



Reply by MaggyMay, on Sat Feb 10, 2018 5:05 pm

Hi Mike,

Thank you for your reply. TPN sorry it’s Total Parental Nutrition so I have home therapy as lose a lot through my ileostomy.

In a lot of ways I am stronger however some days I don’t see that, just the anxiety. 

Have a good weekend,


Reply by Bill, on Sun Feb 11, 2018 5:15 am

Hello Maggy May. Welcome!  Thank you for your post and introducing us to the concept of Total Parenteral Nutrition (TPN). At first I thought it must be something to do with being a parent. However,  I looked it up on Google and it all became clear that it is when all daily nutritional requirements are given because the body cannot absorb them normally.  I feel its true that we learn something every day and I thank you for that.

Best wishes


Reply by charleston guy, on Sun Feb 11, 2018 11:46 am
Hi MaggyMay and Bill,
I was on TPN for the first three months of my
temporary colostomy when I was in the hospital.
At the time I thought of it as Mothers Milk.
Being it was giving the nutrients that would
come from Breast milk. Luckily I’m not having
it as the source of nutrition needed. Even with
my Permanent Ileostomy. Though I do have
be careful of dehydration for not being able
to extract the fluids from eating foods that would
have it that my colon would extract. Just thought
I’d offer a little comment on TPN.
Reply by dadnabbit, on Sun Feb 11, 2018 3:19 pm


TPN is the means my surgeon used to facilitate poisoning me by administrating drugs that I had refused to take orally, for which I was on record as having caused severe diarrhea and bleeding twice in the past.  They were administering these drugs for a disease (C DIFF) that their own tests that they had taken PROVED I did not have.  They obviously KNEW there was no C Diff because I was taken out of isolation, moved to ICU, and the caretakers no longer had to wear protective gear (hazmat suits) that are required when treating a C Diff patient.  The harmful meds were put into the "TPN" surreptitiously, which explained my continued bleeding, but I would never have known if I had not seen the ICU nurse adding them to the IV at 3am one morning.  When I asked she innocently told me the pharmacy had forgotten to add the vancomycin and metronidazole to the fluids. I immediately ripped the PIC line out of my neck which caused a tremendous commotion in ICU.  There was blood everywhere and I was yelling at anyone who came anywhere near me to stay away--DO NOT TOUCH ME.  After less than 24 hours the diarrhea and bleeding had COMPLETELY stopped, because they were a reaction to the meds, not a colon issue, and the Mayo clinic pathology report that was withheld from me stated as much when the surgeon received it six days earlier.  I was rushed into surgery two days earlier that originally scheduled--now totally against my will, where I lay in pre op for 5 hours where they sedated me before I was wheeled into surgery.  I yelled, screamed and cried the entire five hours before surgery and was dosed THREE different times with meds to "calm me down"  My husband was NEVER notified, and the ativan and valium allowed the doctor and anesthesiologist to "believe" that I was a "willing" surgical patient.   When I tried to speak up, even as doped up as I was, the pre op nurses replied I was "just confused" and on a lot of meds for anxiety, and so I was ignored.  The teamwork of lies cost me an entire colon, (which afterwards was found to have NO issues other than inflamation caused by an allergic drug reaction), a right ovary, (because the surgeon "thought" he saw something--there was NOTHING) and a gall bladder which had a microscopic 2mm stone, so small as to be unnoticeable, and certainly not requiring the removal of a gall bladder.  When getting TPN (total parenteral nutrition) make sure that's ALL they are putting in the bag. They believe they have the right to decide for you what course of action you should take, and get away with most times claiming standard of care.



Reply by MaggyMay, on Sun Feb 11, 2018 4:18 pm

Thank you all for your comments. 

I am so grateful that each one of you has taken the time to reply.

Thank you!

Reply by Bill, on Mon Feb 12, 2018 2:44 am

Hello Nancy. Thank you for sharing your story, which I'm so sorry that you had to go through. Thank goodness, not all doctors are like that and most of them would not dream of prescibing medication without first discussing it with their patient. However, it is by no means unheard of and the practice of giving dangerous medication surreptitiously has increased enormously in recent years in the field of mental health. I believe it needs investigating and sorting out but, as you have hinted, there appears to be a conspiricy amongst staff to keep quiet, rather than blow the whistle. I have noticed it most in residential homes. Particularly those catering for the elderly dementing people who, if they happen  to be too active, too loud, or in any way difficult for the staff or establishment, will be drugged to such an extent that they become like the walking dead. It motivates me to another rhyming verse, which is a parody of the poem 'what is this world, if full of care?: WHAT KIND OF WORLD, IF LACKING CARE, EACH ONE OF US MUST BE AWARE, THAT THERE ARE THOSE WOULD DO US HARM, WITH NO ONE RAISING THE ALARM.  Sorry I have only done one verse at present but, during the day, I will put my mind to pen some more. Thank you so much for the concept and I hope that such horrible 'bullying' never happens again future.

Best wishes


Reply by lyn, on Tue Feb 13, 2018 6:28 am
Hello im Marilyn from Philippines im new here on this site. Hope it could be a great help for me as i am only using a plastic food wrapper for my ostomy alternate for the ostomy bags itself. I have so much difficulty times dealing with this since i have this stupid thing attached to my skin plus this improvise ostomy bag that i made. The reason i have ostomy is because i have chron's disease. I couldnt afford to buy that thing because of financial status and i am jobless now. I dont have any financial support except from my fathers low income. Anyone who can give me of their leftovers is highly appreciated.
Godbless to anyone of us here?

Reply by Ewesful, on Mon Apr 30, 2018 9:03 pm

There is a good chance you need to have your blood evaluated to see if you are getiing enough of the right vitamins/nutrients etc into your system.  I had a few times when D was nearly non-existant.  That was easy to fix but nothing works overnight!    Iron is hard to keep in balance if you have issues with certain foods/nutrients getting fully into the blood stream.  I have mine done every 6 months now and if a problem starts to show then I try to fix it and test in 6 weeks -- Dr hads been excellent in helping me sort this  out.

Don't wait for things to straighten out before seeking someone to sort out the reason....


Reply by AussieOstomy , on Sat May 05, 2018 11:17 pm

Hi everyone, I too have suffered horrendously with largely anxiety, and secondly depression since surgery. It has made the battle of regaining good health very hard. I personally believe it is connected to post stress as I have noticed the anxiety heightening when anything medical is even mentioned. Though I am still at a stage that I need reviewin , tests etc due to this being my first year of an ilestomy.

i always say to myself, I didn’t sign up for this. They said nothing of all these after effects when an ilestomy was discussed. 😃

but at the end of the day I had no choice, and have to battle through it all. It is in a strange way, supportive knowing, I am not alone. 

Reply by looking forward, on Sun Nov 25, 2018 10:19 am

oh i feel for you. i am about to have my surgery and am already on antidepressant let me know how you are doing. where do you live?? i am in florida

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