Meet & talk to fellow OstoMates 20,175 members

Continent Ileostomy

Posted by littlered1, on Mon Jan 15, 2018 8:42 pm

Does anyone here have a continent ileostomy? I have had one since 1980, having had a conventional ileostomy for four years and deciding to have the conversion. I realize so much has changed in the options available in the last 38 years, but I was just wondering if anyone else has one? 

Reply by Zappo, on Mon Jan 15, 2018 9:37 pm

I've got mine at the Mayo Clinic in 1979. Have you had your shoulder surgery?

Last edited by Zappo on Mon Jan 15, 2018 9:51 pm; edited 1 time in total
Reply by littlered1, on Mon Jan 15, 2018 9:45 pm

Thanks for responding! I got mine first at Mt. Sinai in NYC, and after two repairs, went to the Cleveland Clinic for the third revision. I havwent had any problems since. How are you doing?

Reply by Zappo, on Mon Jan 15, 2018 9:53 pm

My last repair was also at the Cleveland Clinic.  No problems for last six years.  Did you have your shoulder surgery?

Reply by Zappo, on Mon Jan 15, 2018 9:55 pm

I've been having shoulder pain and thinking of going to a doctor. Never thought about how I would handle surgery.

Reply by Zappo, on Mon Jan 15, 2018 10:14 pm

One last comment.  If you are on Facebook, there are two groups for continent ileostomies.  Just search for Koch Pouch.  Lots of collective wisdom.

Reply by littlered1, on Mon Jan 15, 2018 10:58 pm

Oh, thanks for the info! I will check that out. I live in an area where the medical community is clueless as about the CI, so i feel isolated and insecure I may need any medical care. I thought I might need a hysterectomy and was worried about that, but so far, that’s not an issue!

who did your Kock pouch! Dr. Fazio did mine at CC in 1981.

and yes, I had major shoulder surgery almost four years ago. Did I post that on here? I don’t remember that -lol! It was very challenging, for many reasons. I’m doing fine now. However,  my yoga practice and teaching have changed quite a bit.


* Please, do not post contact information like email, Facebook or Twitter accounts, or phone number. These will be removed by the Administrator.
All times are GMT - 4 Hours
Currently online: 16    
4 members & 12 visitors
Jennie (f)
mark (m)
sean (m)
w30bob (m)