Does anyone here have a continent ileostomy? I have had one since 1980, having had a conventional ileostomy for four years and deciding to have the conversion. I realize so much has changed in the options available in the last 38 years, but I was just wondering if anyone else has one?
Thanks for responding! I got mine first at Mt. Sinai in NYC, and after two repairs, went to the Cleveland Clinic for the third revision. I havwent had any problems since. How are you doing?
My last repair was also at the Cleveland Clinic. No problems for last six years. Did you have your shoulder surgery?
I've been having shoulder pain and thinking of going to a doctor. Never thought about how I would handle surgery.
One last comment. If you are on Facebook, there are two groups for continent ileostomies. Just search for Koch Pouch. Lots of collective wisdom.
Oh, thanks for the info! I will check that out. I live in an area where the medical community is clueless as about the CI, so i feel isolated and insecure I may need any medical care. I thought I might need a hysterectomy and was worried about that, but so far, that’s not an issue!
who did your Kock pouch! Dr. Fazio did mine at CC in 1981.
and yes, I had major shoulder surgery almost four years ago. Did I post that on here? I don’t remember that -lol! It was very challenging, for many reasons. I’m doing fine now. However, my yoga practice and teaching have changed quite a bit.