I'm actually writing on behalf of my mother, who underwent a surgery for an ileostomy about eight weeks ago. She's suffered from Crohn's for 30 years.
Everything went wrong after the surgery, despite the surgery itself being a success and the stoma being "beautiful" (-quote from the surgeon). Mom developed pneumonia and then experienced kidney failure. She spent 2 weeks in the ICU and is now back on a regular ward, doing ok. But her stoma is pouring out 3-4 litres of liquid stool a day. Today her new surgeon told her that the surgery was a mistake. She's been downhearted and unmotivated since then...as you would be.
But on further research, it seems like there are quite a few ileostomy folks living with high output stomas. It just requires a ton of work and lifestyle changes. I'm wondering if any of you have gone through something similiar, and if so, if you have some words of encouragement for my mother? What steps did you take to start living a "normal" lifestyle?
I should note that she's been on dosages of Immodium and has just started Octreotride today to slow down the output and thicken the stool. But she has already been through a round of medication without much result. So, yeah. That.