Diagnosed with ulcerative colitis in 2014, underwent steroid treatment with prednisone and used maintenance medication, Asacol. Managed UC until mid-2015 when flares became worse, went into Remicade infusions which became less effective, then had urgent surgery to remove my large colon in May 2016. I coped well with the resultant ileostomy, back at work full time 8 weeks out from surgery, pain and drug-free with a short hospital admission in early 2017 due to pain from a stomach ulcer. Had a J pouch formed in July 2017, have never fully recovered total health since then. I have had numerous hospital admissions with epigastric pain, nausea, and vomiting. Past admissions have diagnosed gastritis, but the most recent left me undiagnosed and in the hospital for over 2 months. I have lost over a quarter of my body weight and am dangerously malnourished, so much so that I have finally been hooked up to TPN via a PiC line to be IV-fed nutrition for a month. I'm now questioning whether I should go ahead with the final surgery or have the J pouch removed?
Why Join MeetAnOstoMate?
First off, this is a pretty cool site with 33,086 members. Get inside and you will see.
We're not all about ostomy. Everything is being discussed in the forums.
It's a very special community, embracing all ages and backgrounds. People are honest and truly care.
Privacy is very important - the website has many features that are only visible to members.
Create an account and you will be amazed.
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Hollister
Are you a caregiver for a child with an ostomy? In the summer months, this can become more challenging, thanks to heat, humidity, water activities, and travel plans.
Learn more about caring for children with an ostomy on vacation.
Learn more about caring for children with an ostomy on vacation.