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African Americans with Stomas

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Posted: Fri Jun 29, 2018 9:58 am

Are there any African Americans on this site with stomas?

Posted: Fri Jun 29, 2018 11:48 am

What?  What does somebody's race have to do with a stoma?

  Past Member
Posted: Fri Jun 29, 2018 12:30 pm

This is my first post. I am a black man with an ostomy (stoma is named Jake). I have had it since March. I accepted this by seeing this as a prostethic appliance. Upon waking up and seeing Jake as a part of me (Stage 3B rectal cancer), I said hello to him, and I paid attention to the nurses and watched them change it while I was hospitalized. Upon returning home, I had a visiting nurse stop in. She was amazed how I learned how to change it while sitting up. I have back up supplies everywhere, and yes, I have had blowouts in public places, mostly caused by my seat belt. I don't care who knows or what they think about this. I am in no way embarrassed by having an Ostomy. It is what it is, because without it, I won't be alive right now. Near the end of the year (60-90 days after chemo/radiation concludes), I will have my takedown surgery. I am more apprehensive about internal leakage. External leaks is a minor issue, compared to internal leaks.

Posted: Fri Jun 29, 2018 1:02 pm

HarleyDoll

Huh? Race doesn't have anything to do with having a stoma. I was just asking! Jeez!

Posted: Fri Jun 29, 2018 1:11 pm

Hello Two_buttz. Thanks for your response. I had permanent placement of an ileostomy a few years ago. So, unfortunately there's no takedown surgery for me. I'm still having a hard time dealing with the extra "baggage." I've gained so much weight and I suffer with severe dehydration. I've turned into a diehard introvert. I don't even attend church anymore.

 

  Past Member
Posted: Fri Jun 29, 2018 6:06 pm

Sorry you are having a hard time dealing with this. As far as dehydration, it is most likely due to low electrolytes. You can either drink gatorade-like drinks, or Pediasure. Both have electrolytes. With food, I take Beano, avaliable aqlmost evdrywhere. That helps break down the foods you eat, and help with nutrient absorption. Hang in there. I have PTSD, from militarty service, and I learned to live life, not to have life get to you. I am more self-conscious at home, than in public. WHen I have my chemo bag to wear, folks assume I am packing heat.........I then tell them I am packing poop........they get that embarrassed look....lol

Posted: Fri Jun 29, 2018 6:37 pm

Sure you weren't.  Good try.  It's exactly what you said. 

  Past Member
Posted: Fri Jun 29, 2018 8:31 pm

Some black folks hide the fact they even have an ostomy appliance. Call it pride if you must, but I am not ashamed about having this. No shame in my game. If you got it...flaunt it!! I feel very Napolean-like, as he had one as well. So did Ike Eisenhower.

  Past Member
Posted: Fri Jun 29, 2018 10:34 pm

I’m not a girl but I know of one on the site she is recovering from sists removal. look up angel she is a blogger here and she is beautiful black woman.with a stoma. welcome to the site.you will find a lot of different people on this site.yes there’s some black community on the site you just have to weaighting around people will get back to you it seems the majority of the people here are white it seems to me from here.wer all just peoples here in Baltimore.be strong 💪 surf 🏄 on.

  Past Member
Posted: Sun Jul 01, 2018 8:12 pm

B-Mo, huh? I have been to the Inner Harbor often..........I miss the ESPN Zpne. I used to reside in LAncaster, PA. Only about an hour 15 minutes away.

 

  Past Member
Posted: Sun Jul 01, 2018 9:08 pm

the clam chowder is the best on the planet 🌎.in your area.wet to school for a few weeks back in the 80 s. the clubs bye the ocean 🌊 is awesome.the stars ⭐️ are very close and easy to see. its 6 blocks to the country side 60 blocks to the harbor.i like fells point.the eatery at the harbor rockin robin cherry 🍒 Coca-Cola chesburger and fries 🍟 20 minuts I’m home 🏡. You ever in Baltimore give me a call.

Posted: Sun Jul 08, 2018 10:31 am

My Sister had the surgery along with several bag blowouts. Finally got that issue resolved but she is still constant pain around the stoma area. Anyone else has had this issue? 

Posted: Sun Jul 08, 2018 10:38 am

Having pain issues around the stoma area. Any others with this same issue?

Posted: Wed Jul 11, 2018 6:21 pm

yep. Is it outside?

Posted: Tue Jul 17, 2018 5:49 pm

Hello 👋 I’m Denise and I understand your question when I first came to this site I wondered the same thing only because it appears that non African Americans are silent about their ostomy. I’m a part of several support group and yes we are silent which is very interesting to me. Don’t know exactly why we are but we are. Now in my family it is a hush hush kind of thing. Been in my family nobody wants to see that cover it up. And yes it does seem like other cultures are more open about it and don’t mind showing it. And I’m glad they do because it has helped me to better except it. I hope and pray that we as a culture will open up more and not be afraid to share and talk about it 

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