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Hello!

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Posted: Sat Aug 25, 2018 9:40 am

I am new here, and was hoping to find others with ostomy insecurities like I have.  So, hello to all fellow ostomy members! Smile 

Posted: Sat Aug 25, 2018 9:58 am

Hello. I think you came to the right place. You will take charge more and more each day, no more insecurities. Your stoma will become routine.

Lots of old posts and blogs to go through. Try the chat room. It is not active at times but try different times of the day and someone will chat back.

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Posted: Sat Aug 25, 2018 10:50 am

Hello, I am new here, but have found much support.  I am stilll learning about my ostomy and have much hope.   I wish the same for you.  Need support??  You've come to the right place.  

Best wishes, Glenda

Posted: Sat Aug 25, 2018 11:04 am

Greetings and good days agead, I've had my complete proctocholectomy with Ileostomy since 1999,, ,You will manage, become so proficient over time yoully begin to live like you don't have one, second nature......smile because it will melt out of your mind eventually, and You will conquer....over time.

Posted: Sat Aug 25, 2018 12:56 pm

Hello ellkay. Greetings! you will find all sorts of people and posts on here from those with insecurities to those who have mastered the problems and frustrations.  I hope you get waht you are looking for  and look forward to hearing from you in   the future.

Best wishes

Bill 

Posted: Sat Aug 25, 2018 5:37 pm

Hi Ellkay, welcome! I am fairly new as well and have receive lots of valuable information from folks on this site! They are awesome. Ask the questions you would never ask to someone in person, sometimes even your doctor to people here! Nothing you feel or is happening in your life is taboo!We have all had the same things happen to us, the same embarrassing moments, and basically the same path to understanding our Ostomy, conquering the obstacles around it and getting you head around it!  

Puppyluv

Posted: Sun Aug 26, 2018 2:51 pm
Hello, and thank you for the warm welcome! Smile I think the most problem I have are the after affects from the full resection, like incontinence. Or the "unexpected" sound/odors that suddenly come out of nowhere. For the first time since my surgery, I had a very uncomfortable and embarrassing moment last week at work. I had a 'release', and it was one of those 'silent killer" ones. One of my guys came out of his office, and said "WHAT is that smell? The other person I was talking to also said "yeah, I smell it, too". The he says (the first guy) "it smells like a dead animal!" I just said "well, they are doing some work on the other side", and then got up and left. I wanted to die a million times! Thank goodness it was time for me to go home! Anyway, I've also tried to explain to my Level 4 Director that I am NOT comfortable being in meetings and why, but he doesn't seem to care. I'm half temped to report him for not understanding my medical issues. Sad Anyway, I know others probably have it worse than I do, but when things like this happen, you do feel alone. Other than that, I've accepted my ostomy. It saved my life, so no issues there. It's the AFTER math that bothers me more! LOL!

Again, thanks for helping and the warm welcome! Smile
Posted: Sun Aug 26, 2018 5:14 pm

I know it is sad that you had to suffer through that. I have not been around a lot of people that Know about my Ostomy. I am a very private person so do not share by health issues unless it is a need to know. Sad but that includes family. I am sure that circle will expand in the future but hopefully I will have this under control by then. Not sure there is any answer to the gas and and odor except diet. I do use a lubricant with order control in my bags. It helps some. I have also tried Baking Soda. It get kinda heavy. You can only use a little. 

I felt alone until I came on here! Believe me, we are all in this together!

Puppyluv

Posted: Sun Aug 26, 2018 10:18 pm

Just a few people in my department knows I actually had a colonostomy. Most only know I had cancer, and have been very supportive. I don't get pitied,  and no one treats me any differently, which is the way I want it.  The co-workers that made the comment obviously didn't know I had an ostomy, but better yet, didn't know it was ME the odor was coming from. Thankfully, that was the only time it was THAT BAD! I've used lubricants, charchol, etc., but nothing really seems to help. I take ONE laxative pills daily to keep things normal, and that helps a lot. It's the GAS part that is so unpredictable.  Before our surgery, we could, for the most part, feel the "gas" coming, and could usually stop it. But with this type of surgery, you can't control it. I think I will try taking a few Beano/Gas-X tablets before each meal to see if that will be a good preventative. Trial and error, right? LOL!

And puppy, even though you are a private person, and I understand that, sharing, especially with close friends and family, really does help you get through this, and not feel so alone. I think they would want to know, too, so they can be there for you when or if you ever need to talk and a shoulder to lean on Smile Just a thought for you Smile  

 

Posted: Mon Aug 27, 2018 3:45 am

I had my colostomy Tuesday and I’m already home healing. It’s weird having your intestine outside your body and and bag attached but with each day I’m healing and learning to be thankful that I’m alive and kicking. I don’t know if I’ll have the BCIR procedure done later on. I’m taking it a day at a time. 

Posted: Mon Aug 27, 2018 2:42 pm

ellkay,

  Welcome to the site!  Yes you will find an abundance of support on this site.

  Having a colostomy, have you tried irrigating?  I myself have an ileostomy and cannot do that but from the colostomates on this site, irrigation seems to resolve a lot of issues.  I'm sure one of our colostomates will chime in here?

 

Bain

Posted: Mon Aug 27, 2018 8:08 pm

Hi Ellkay, Bain in correct! I have been very lucky with all the advise and encouragement from folks on this site! I just started irrigation. This will be my third day. Guess it is going okay. I see this as freedom once I get my colon trained to go the same time every day. Anything is better than leaky pouches! Lol  glad to answer any questions and I posted pictures on my profile of all the stuff to use in the irrigation kit as well as some sample caps that I am not able to use yet but hope to replace the bag with these soon.

Puppyluv

Posted: Tue Aug 28, 2018 11:11 am

I can  relate.  I had my daughter, 5 year old granddaughter and 3 year old grandson here for two weeks.  I had a rather large gas output happen.  All of a sudden I hear my granddaughter scream out "What is that smell?  That's the grossest thing I have ever smelled!"  My daughter quickly checked my grandson as he is being potty trained.  I kept quiet as I wasn't in the mood at the time to explain everything to a 5 year old!  Anyway, it was somewhat funny.  I just find it better to keep my mouth shut unless I am one on one with someone.  In time, you will get used to everything.  In regards to meetings, if that is part of your job duties, I would suggest you hit the bathroom a few minutes before to empty out and add some pouch deodorant before you go to the meeting.  I find spritzing a little perfume on the bag cover (If you have cloth covers) helps alot.  Good luck to you!

Posted: Tue Aug 28, 2018 3:45 pm

Hi - I had lots of insecurities in the first several months, but things have gotten a little better with time. I'm in the 10th month of my colostomy and am getting experienced at caring for it without total anxiety. Still worry a lot, but able to function more or less - go to Pilates, eat lunch out with my friends, hang out with my family, play in my art studio. This site has been a great help to me; there is so much support here. Best of luck to you and write whenever you feel like it.

Posted: Tue Aug 28, 2018 5:20 pm

hi ellkay, had same problem as you. i use m-9 which is a deoderant type of thing to put in the bag and keep the smell down. as for the noise, well its still scares the shit out a me when i fart off.(scares the shit outa me!!!!!!!!!!!!) after a while you'll sometimes feel it comin on and sometimes not. i've been told why not put a whistle on it! but i find myself with my hand covering the thing to silence any surprises. what you'll need to do is watch the kind of food you eat, and don't bend over or stretch to fast. time will help you get used to a lot of the things that will happen.

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